Special Interest Group: Promoting Partnerships between Patient Advocacy Groups and Researchers to Improve Autism Research

Location: Marriott Marquis San Francisco, NOB HILL A/B
Date: May 13th, 2017

Are you a researcher or clinician who is interested in collaborating with patient advocacy groups of genetic disorders associated with autism?

Join us at a Special Interest Group co-organized by ASF Chief Science Officer Dr. Alycia Halladay!

When? Saturday, May 13th at 7:15AM
Where? Marriott Marquis San Francisco, NOB HILL A/B

Description: Advances in genetic testing have resulted in the discovery of multiple rare variants that greatly increase the risk of autism spectrum disorder (ASD) and related neurodevelopmental disorders. In order to create communities and accelerate our understanding of these disorders, affected families have established Patient Advocacy Groups (PAGs). This SIG represents a timely effort to increase crosstalk between these PAGs and researchers and clinicians who study and care for these populations, with a focus on the following key topics that span disorders:

  • Biorepositories and tissue banks
  • Family registries
  • Clinical trial consortium