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Research by Topic: Service Delivery
"Adults with autism face high rates of unemployment. Supported employment enables individuals with autism to secure and maintain a paid job in a regular work environment. The objective of this study was to assess the cost-effectiveness of supported employment compared with standard care (day services) for adults with autism in the United Kingdom. The analysis […]
Guest blogger Marcela De Vivo shares insight on some of the difficulties immigrant families face when getting help for their child with autism in this week’s ASF blog post.
IACC News Update: IACC Recommends Public and Private Health Coverage for Early Behavioral Intervention for Children with ASDPublished March 25, 2013 in IACC
With the number of people seeking ASD evaluations in adulthood on the rise, researchers sought to investigate how DSM-5 criteria would fare in a diagnostic clinic for adults with minimal intellectual disability. Compared to ICD-10R and DSM-IV-TR, DSM-5 specificity was good but sensitivity was poor: 44% of adults who met ICD-10R ASD criteria and 22% who met DSM-IV-TR criteria for Asperger syndrome or autistic disorder would not qualify for a DSM-5 ASD diagnosis.
“Little is known about accessibility to health care transition (HCT) services for youth with autism spectrum disorder. This study expands our understanding by examining the receipt of HCT services in youth with ASD compared with youth with other special health care needs.”
More military families will have access to ABA under a new government program.
This article reviews the current literature regarding a range of quality of life outcomes of aging adults with ASD. Studies that have addressed life expectancy, comorbid physical and mental health issues, ASD symptomatology, and social, residential, and vocational outcomes are reviewed.
CDC’s October Learning Connection highlights autism and features learning products and resources for healthcare providers and caretakers.
An expanded report released by Interagency Autism Coordinating Committee (IACC) and the Office of Autism Research Coordination (OARC) helps inform autism research strategic planning effort by assessing the institutions conducting ASD research and the funding organizations supporting the research publications, as well as the extent of collaboration between authors.
Interesting article about the financial impacts of autism on American families from The Atlantic.
Simple wrist sensors let neurologists collect better data about patients with epilepsy and could alert patients that they need to seek medical care.
On April 2, in honor of the fifth annual World Autism Awareness Day and HHS Autism Awareness Month the IACC has released its annual list of scientific advances that represent significant progress in the field.
The Department of Health and Human Services today announced the names of the fifteen individuals invited to participate as public members of the newly reauthorized Interagency Autism Coordinating Committee (IACC). Among the 15 are Alison Singer, president of the Autism Science Foundation, who was reappointed for a second term.
Prevalence of Autism Spectrum Disorders Autism and Developmental Disabilities Monitoring Network, 14 Sites, United States, 2008Published March 29, 2012 in MMWR (CDC)
Full text of today’s CDC report indicating 1 in 88 children is now diagnosed with an autism spectrum disorder.
New Data Show Children With Autism Bullied Three Times More Frequently Than Their Unaffected SiblingsPublished March 26, 2012 in MarketWatch
Today, the Interactive Autism Network (IAN), www.ianproject.org , the nation’s largest online autism research initiative and a project of the Kennedy Krieger Institute, reports preliminary results of the first national survey to examine the impact of bullying on children with autism spectrum disorders (ASD). The results show that 63 percent of children with ASD have been bullied at some point in their lives. These children, who are sometimes intentionally “triggered” into meltdowns or aggressive outbursts by peers, are bullied three times more frequently than their siblings who do not have ASD.
On average, families with a child who has autism earn 28% less than those of a child without a health limitation; nearly $18,000 less per year.
Given that almost 70% of young adults with Asperger syndrome have suffered from depression, it is vital that psychiatric care staff are aware of this so that patients are given the right treatment, reveals research from the Sahlgrenska Academy at the University of Gothenburg, Sweden.
Results were released yesterday from the Pennsylvania Autism Needs Assessment, which includes feedback from 3,500 Pennsylvania caregivers and adults with autism, making it the largest study of its kind in the nation.
Concerns that proposed changes to autism criteria in the upcoming Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-5) will exclude many individuals from diagnosis and treatment are unfounded, says the American Psychiatric Association (APA).
Researchers Use Workshops To Teach Job Skills And Learn More About Families With Children On The Autism SpectrumPublished January 11, 2012 in Medical News Today
Researchers at the University of Utah have created a program that helps kids with autism focus on building their skills and utilizing an aptitude for visual-spatial thinking, computers and other electronic media.
Evaluation of a Parent-Based Behavioral Intervention Program for Children with Autism in a Low-Resource SettingPublished January 1, 2012 in Journal of Pediatric Neuroscience
Many countries do not have widely available or established resources for individuals with autism. This study from New Delhi, India examines parent-based intervention programs for children with autism in a low-resource setting.
As more children are diagnosed with autism, researchers are trying to find unrecognized cases of the disorder in adults. The search for the missing millions is just beginning.
An autism treatment called applied behavior analysis, or ABA, has wide support and has grown into a profitable business. It has its limits, though, and there are gaps in the science.
A new center at the Massachusetts Institute of Technology will focus on unraveling the neuroscience behind social behaviors, helping to push forward research and, the scientists hope, to advance diagnosis and treatment of autism spectrum disorders.
Public spending on children with autism in California varies greatly by race and class. A major reason: Not all families have the means to battle for coveted assistance.
A new study suggests training peers can help children with autism spectrum disorder improve their social skills, even more than a direct adult-led intervention.
Nature Magazine profiles the Autism Science Foundation and its co-founder, Alison Singer.Convinced by the evidence that vaccines do not cause autism, Alison Singer started a research foundation that pledges to put science first.
Autism is normally diagnosed between the ages of 2 and 3, but new research is finding symptoms of autism spectrum disorders in babies as young as 12 months.
Dr. Anjum Usman, of Naperville, has been a star in the world of alternative treatments for autism for years, but now she’s facing professional discipline for her approach to the frustrating disorder.According to the complaint, which was filed Wednesday, Usman “made statements to (the boy’s) mother that the prescribed treatments had positive clinical benefits for children with autism, despite the lack of empirical research.”
Statistics show that the number of people diagnosed with autism has increased steadily over the past 30 years resulting in a surge in the number of adults with autism graduating from high school. However, preliminary employment studies indicate that this population may earn less and be employed at a lower rate compared to other people with disabilities. Now, an autism expert at the University of Missouri is identifying employment resources that are available for people with autism and steps employers can take to improve the workplace and hiring process for this population.
Five years ago, Philadelphia was not on the map when it came to researching one of the most mysterious and expensive childhood medical conditions of our time. Now it is among the top cities in the nation, with expertise in nearly all the key fields – genetics, environmental exposure, brain imaging, behavioral interventions – that are critical for finding causes and developing treatments. Most of the local talent is at the Center for Autism Research at Children’s Hospital, which in less than four years has grown into a powerhouse with more than 100 researchers and staff running two dozen studies.
Researchers have for the first time identified two biologically different strains of autism in a major breakthrough being compared with the discovery of different forms of cancer in the 1960s. The findings, to be announced at an international autism conference in Perth today, are seen as a key step towards understanding the causes of autism and developing effective treatments as well as a cure. The findings bring hope that the communication, socialization and other difficulties that autistic children experience can be tackled more easily and earlier.
This study estimated the ASD prevalence in a psychiatric hospital and evaluated the Social Responsiveness Scale (SRS) combined with other information for differential diagnosis. Chart review, SRS and clinical interviews were collected for 141 patients at one hospital. Diagnosis was determined at case conference. Receiver operating characteristic (ROC) curves were used to evaluate the SRS as a screening instrument. Chi-squared Automatic Interaction Detector (CHAID) analysis estimated the role of other variables, in combination with the SRS, in separating cases and non-cases. Ten percent of the sample had ASD. More than other patients, their onset was prior to 12 years of age, they had gait problems and intellectual disability, and were less likely to have a history of criminal involvement or substance abuse. Sensitivity (0.86) and specificity (0.60) of the SRS were maximized at a score of 84. Adding age of onset
Researchers sought to determine if sheltered workshops help prepare individuals with ASD for competitive employment and found that individuals with ASD achieve better vocational outcomes if they do not participate in sheltered workshops prior to enrolling in supported employment.
A long-awaited study of autism prevalence in Korea came out today in the The American Journal of Psychiatry. Results showed a much higher prevalence estimate than previously found, along with a large fraction of the autistic students previously unidentified and being educated in regular education programs.
Dr Brugha, who is also a consultant psychiatrist working in the NHS with the Leicestershire Partnership NHS Trust, said none of the cases with autism found in the community survey throughout England knew that they were autistic or had received an official diagnosis of autism or asperger syndrome.
An early screening test for autism, designed to detect signs of the condition in babies as young as 1 year old, could revolutionize the care of autistic children, experts say, by getting them diagnosed and treated years earlier than usual. The checklist available online now asks parents or other caregivers about their child’s communication skills, from babbling and first words to eye contact.
While there is an increasing equality in terms of the likelihood that children from communities and families across the socioeconomic spectrum will be diagnosed with autism, a new study finds that such factors still influence the chance of an autism diagnosis, though to a much lesser extent than they did at the height of rising prevalence.
A new set of analyses offers sobering news in the long search for effective treatments for autism. Researchers concluded that medications are of little help to most autistic children. Although intensive behavioral therapies can be effective, they don’t work for everyone, and doctors don’t have a way to predict which children will benefit, according to three reviews in today’s Pediatrics.
Research in computer graphics and computer vision tries to make using computers easier. We can find a more comfortable, intuitive and intelligent way to use the computer that feels like you’re talking to a friend. This could also help disabled people use computers the way everyone else does.
The Supreme Court handed a victory to vaccine makers Tuesday, ruling 6-2 that U.S. law shields them from product-liability suits alleging defects in a vaccine’s design. The high court ruled in the case of a Pennsylvania couple who alleged that their daughter suffered profound impairments after receiving a diphtheria, tetanus and pertussis vaccine made by Wyeth, now part of Pfizer Inc. The result takes a key legal tool out of the hands of those who contend their children’s autism was caused by vaccines.
Use of medical, mental health and case management services for young adults with an autism spectrum disorder appears to decline after high school, according to a report.
Researchers conducted a telephone survey to determine the rates of service use among young adults with autism spectrum disorders (ASDs) during their first few years after high school. Rates of service ranged from 9.1% for speech therapy to 41.9% for case management. 39.1% of youths with an ASD represented by the survey received no services. […]
The International Center for Autism Research and Education (ICare4autism), a New York-based charity, announced plans to create the world’s first Global Autism Center on Mt. Scopus in Israel, dedicated to catalyzing breakthrough innovation in autism research and treatment. In a ceremony at Jerusalem’s City Hall hosted by Mayor Nir Barkat, ICare4autism’s President Joshua Weinstein signed an agreement paving the way for ICare4autism to acquire the campus of Bezalel Academy of Art in 2013, and convert it into a center.
There is still much that is unknown about autism spectrum disorders, but a University of Nevada, Reno psychologist has added to the body of knowledge that researchers around the world are compiling to try to demystify, prevent and treat the mysterious condition.
Mutations in a single gene can cause several types of developmental brain abnormalities that experts have traditionally considered different disorders. With support from the National Institutes of Health, researchers found those mutations through whole exome sequencing ? a new gene scanning technology that cuts the cost and time of searching for rare mutations. Whole exome sequencing can be applied to dozens of other rare genetic disorders where the culprit genes have so far evaded discovery. Such information can help couples assess the risk of passing on genetic disorders to their children. It can also offer insights into disease mechanisms and treatments.
Results of a randomized clinical trial found an innovative multi-component summer social development program to be effective in improving the social performance of children with high-functioning autism spectrum disorders.
There has been a major increase in the incidence of autism over the last twenty years. While people have differing opinions as to why this is (environment, vaccines, mother’s age, better diagnostic practice, more awareness etc.) there are still many children who have autistic traits that are never diagnosed clinically. Therefore, they do not receive the support they need through educational or health services.
Doctors say they can understand why patients sympathize with celebrities and closely follow their battles with serious illnesses. It helps to know that health problems can even affect celebrities. Yet celebrities who can command huge audiences and sell thousands of books have a special responsibility to get their facts right, says Bradford Hesse, who studies health communication at the National Cancer Institute. Many doctors say they’re troubled by stars who cross the line from sharing their stories to championing questionable or even dangerous medical advice.
Parents often swear their children with autism get better while they are undergoing alternative therapies. Pitches from doctors providing alternative treatments are difficult to resist, he said. But in evaluating a therapy, the challenge is determining how much, if any, of the progress can be credited to the treatment. Some parents are beginning to realize […]
Dr. Carlos Pardo, a Johns Hopkins neurologist, and his colleagues autopsied the brains of people with autism who died in accidents and found evidence of neuroinflammation. This rare look inside the autistic brain had the potential to increase understanding of the mysterious disorder. He knew it could also inspire doctors aiming to help children recover […]
Thousands of U.S. children undergo these therapies and many more at the urging of physicians who say they can successfully treat, or "recover," children with autism, a disorder most physicians and scientists say they cannot yet explain or cure. But after reviewing thousands of pages of court documents and scientific studies and interviewing top researchers […]
Scientific understanding and medical treatments for autism spectrum disorders (ASDs) have advanced significantly over the past several years, but much remains to be done, say experts from the Center for Autism Research at The Children’s Hospital of Philadelphia who recently published a scientific review of the field.
Autism Science Foundation president Alison Singer is well known in the autism community for her formative role at Autism Speaks, for her controversial participation in their Autism Every Day video, and for leaving Autism Speaks to found the Autism Science Foundation.She a role model for autism parents struggling to balance advocacy with positivity and work with family, especially those who tirelessly investigate ways to help our children lead fulfilling lives, actively respect neurodiversity, and continue to educate ourselves and others about autism perspectives and attitudes. Read on to learn about the founding and goals of the Autism Science Foundation.
Fifty-eight percent of children had a documented autism spectrum disorder. In adjusted analyses, children who were Black (odds ratio [OR] = 0.79; 95% confidence interval [CI] = 0.64, 0.96), Hispanic (OR = 0.76; CI = 0.56, 0.99), or of other race/ethnicity (OR = 0.65; CI = 0.43, 0.97) were less likely than were White children […]
This study compared mortality among Danish citizens with autism spectrum disorders (ASDs) with that of the general population. A clinical cohort of 341 Danish individuals with variants of ASD, previously followed over the period 1960-93, now on average 43 years of age, were updated with respect to mortality and causes of death. Standardized mortality ratios […]
Two strategies have been proposed for early identification of children with autism spectrum disorders (ASD): (1) using a general screening tool followed by an ASD-specific screening tool for those who screen positive on the former or (2) using an ASD-specific tool for all children. The relative yield of these two strategies has not been examined. […]