Neural Markers in Fragile X Syndrome

Location: Boston, MA - Boston Children's Hospital
Start Date: March 26th, 2018
End Date: August 1st, 2019

Dr. Carol Wilkinson, MD, PhD, and Dr. Charles Nelson, PhD, at the Labs of Cognitive Neuroscience at Boston Children’s Hospital are recruiting young boys with Fragile X Syndrome (FXS) to participate in a studying investigating how differences in brain activity affect learning, language, and behavior in FXS.

 

Eligibility

  • Boys aged 32-66 months with diagnosis of Fragile X Syndrome based on full mutation of the FMR1 gene.

Involvement

  • Single 4-6 hour visit at the Labs of Cognitive Neuroscience at Boston Children’s Hospital.
  • This visit includes clinical and behavioral assessments that will evaluate your child’s thinking, motor skills, language skills, and social communication. In addition, we will measure your child’s brain activity using electroencephalography (EEG).
  • EEG is a safe and radiation free way to measure brain activity in response to different sounds and pictures.

Compensation

  • Families will receive a small toy and $25 for participating. We will provide free parking and child care for siblings.

Families can learn more by visit wherekidshelpkids.org. For more information about the study, please
contact Dr. Carol Wilkinson at FXSNeuralMarkers@childrens.harvard.edu.