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Grant Opportunity for Families Affected by Infantile Spasms
Published October 28, 2019 in Dup15q Alliance
Since 2014, the Child Neurology Foundation has partnered with the Harnett Family in commemorating Infantile Spasms Awareness Week from December 1-7 by offering a $1,000 grant to a family impacted by infantile spasms. The grant was founded by Michael Harnett to honor the life and memory of his nephew, Brendan Michael Harnett, who passed away from infantile spasms before his first birthday.
Also, in collaboration with our Infantile Spasms Action Network (ISAN) partners, the CNF will be offering ten separate RISE Family grants to families who have a child living with infantile spasms.
Both the Harnett and Rise Family Grants are open to applications. The deadline is November 8th, at 8 AM Central Time. The families will be awarded the grants through a randomized selection. The grants are meant to supplement treatments or procedures for infantile spasms that are not fully covered by insurance. In the past, families have put the money towards durable medical equipment, assistive technology, therapy services or respite care.
If you or your loved ones are interested in the grants, please submit your interest by completing this application. Anyone affected by IS at any time can apply – https://www.surveymonkey.com/r/XBHWV9J
Questions can be sent to firstname.lastname@example.org.