Needs Assessment of Families of Rare Genetic Disorders

Published April 24, 2020

Families with rare genetic disorders and ASD may have very different experiences during COVID than other families.  In order to better understand and address these specific challenges, ASF is collaborating with UCLA on a needs assessment of these families.  The survey takes about 10 minutes to complete.  The goal is to gather data quickly in order to raise public awareness about the challenges faced by families with a rare genetic disorder and then develop focused, effective resources for them in a timely manner.  If you are a family affected by a rare genetic disorder and ASD,  click here to complete the questionnaire: 

https://uclahs.az1.qualtrics.com/jfe/form/SV_3dXLwMJYag0ukND

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