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Research by Topic: ASD
You may have heard the news: The prevalence of autism is 1:40 according to an email survey of parents. However, there’s more information in the study that’s worthy of consideration: The high rate of unmet mental health needs in those with ASD. Learn more on the ASF podcast. Read more about the study.
Help Make the Science Happen! For nearly a decade, ASF has launched, funded, and supported autism research projects to improve diagnosis, develop interventions, and enhance outcomes. This Giving Tuesday, you can help fuel another decade’s worth of critically needed autism research. Donations to ASF not only advance scientific progress, they give families challenged by autism the gift […]
While diagnosis before 3 years of age is ideal, circumstances may not always allow the earliest identification and diagnosis. This week’s podcast explores two of the reasons why diagnosis is not always possible before age 3. One is a study from Denmark and one is from members of the Baby Siblings Research Consortium.
Diagnosis of Autism Spectrum Disorder After Age 5 in Children Evaluated Longitudinally Since InfancyPublished November 8, 2018
A new study from the ASF-supported Baby Siblings Research Consortium explains why a few kids with autism do not receive a formal diagnosis until 5 years or later. Read more here.
This week, ASF wants YOUR feedback on a new paper in the Journal of Autism and Developmental Disorders, which suggests that the reason there is so much discord in the autism community is that people with autism are just too different and have difficulties understanding each other’s perspective. Is this true? What do you think? […]
Dr. Inna Fishman from San Diego State University explains how findings from brain tissue helps scientists interpret data which studies how brain regions connect to each other and why this is important for understanding autism subgroups. Also, researchers from the Karolinska Institutet examine ADHD diagnosed in adults, and find it is similar to autism. Listen […]
This week, Dr. Mark Shen from The University of North Carolina at Chapel Hill explains new findings looking at the fluid around the brain. It’s now seen in families even without a family history of ASD, the finding has now been seen in different independent studies, including those at the UC Davis MIND Institute in […]
Today, ASF announced that it will be leading the newly-launched Alliance for Genetic Etiologies of Neurodevelopmental Disorders and Autism (AGENDA). This alliance is a partnership of research and advocacy organizations focused on improving outcomes of individuals with all forms of autism by fostering a genetics-first approach to autism science. AGENDA will also work to strengthen […]
Filed under: ASD, asf, Autism, collaboration, database, dup15q, Dup15q Alliance, featured, fragile X syndrome, FRAXA, FRAXA Research Foundation, genetic, Phelan-McDermid Syndrome, Phelan-Mcdermid Syndrome Foundation, PMSF, registry, research, Rett Syndrome, Rett Syndrome Research Trust, RSRT, science, SFARI, Simons Foundation, Simons VIP, subtypes, TSA, Tuberous Sclerosis, Tuberous Sclerosis Alliance
This podcast is dedicated to siblings of people with autism who are typically developing. They play an important and beneficial role in development of socialization of those with ASD. But sadly, they also have issues of their own, such as a high rate of issues like anxiety and depression. Those siblings may be genetic carries […]
Recently, Clare Harrop from University of North Carolina at Chapel Hill published two papers which help explain the differences between boys and girls with autism, at least in kids and toddlers. She graciously agreed to talk with ASF about these findings and what it means for better identification and diagnosis of girls with ASD, and […]
This week’s ASF podcast focuses on how co-occuring conditions with autism, like anxiety, depression, and OCD, have changed over time. The increase in these conditions may help in defining different subgroups of autism. Listen on asfpodcast.org or on your favorite podcatcher!
When asked “What do you want to be when you grow up?” in elementary school, Allyson Schwartzman had one answer – “an autism teacher”. Read about how Allyson made her dream a reality by becoming a special education teacher on the ASF blog.
This week’s podcast begins with a comment on the debate over ABA – helpful or harmful? But the big news this week is an analysis of very early, but very published, data on the use of MDMA, also known as “ecstasy” or “Molly”, in people with autism. Called an “empathogen”, MDMA can elicit feelings of […]
Online registration for the 13th Annual Rockland County Autism Symposium is now open. The symposium will include three hour-long discussions and three breakout sessions with the presenters. Presenters include Katrina Roberts, MS, BCBA; Erin Richard White, PhD, BCBA-D; Declan Murphy; Peter Troy, MBA; Jill Harper, PhD; and Shawn Quigley, PhD, BCBA-D. The event will be […]
Researchers at Mount Sinai led by Alex Kolevzon are running a clinical trial of the compound insulin-like growth factor 1 (IGF-1) for children with idiopathic autism. Dr. Kolevzon’s team previously demonstrated the safety and feasibility of IGF-1 in treating Phelan-McDermid syndrome, a single-gene form of autism. Particularly, the IGF-1 treatment improved symptoms of social impairment […]
Filed under: Alex Kolevzon, ASD, Autism, clinical trial, drug, featured, IGF-1, insulin-like growth factor 1, intervention, medication, Mount Sinai, Phelan-McDermid Syndrome, PMS, restricted and repetitive behavior, social impairment, Treatment
Children are not small adults, and this was illustrated this week in two papers studying features of autism across the lifespan. Their symptoms may change, which has implications for treatment – you can’t take an intervention designed for a child and give it to an adult. Hear more on this week’s podcast with an interview […]
The Smithsonian Magazine reported on the story of the Bak family and the Autism Sisters Project, an ASF scientific initiative determined to understand the disparity of autism diagnoses between boys and girls and the potential female protective effect. Through the study of the unaffected sisters of people with autism, the goal is to build a […]
Filed under: adult outcomes, ASD, asf, Autism, Autism Science Foundation, Autism Sisters Project, Diagnosis, Diagnostic Disparities, featured, female protective effect, Genetics, research, science, Smithsonian Magazine
Two weeks ago, the autism research community lost a pioneer, mentor and advocate for the autism community. This podcast only highlights a portion of the enormous contribution he made to autism research and the impact his research had on families with ASD. Also, two people that know him best, one of his current mentees, Suzannah […]
On this week’s podcast, the link between polycystic ovarian syndrome and autism explained and tied in with a new study on the highly toxic chemical DDT. They do have a common link. Research also shows that environmental exposures and maternal medical conditions contribute to a host of outcomes and comorbidities, autism being one of them.
Filed under: ASD, asf, Autism, Columbia University, DDT, featured, PCOS, podcast, polycystic ovarian syndrome, Reproductive Medicine Associates of New Jersey, research, science, University of Cambridge
Listeners to the ASF podcast get a break this week, although you are all encouraged to check out the Spectrumly Speaking podcast. Spectrumly Speaking is a podcast dedicated to women on the autism spectrum, produced by Different Brains. Every two weeks join hosts Becca Lory, CAS, BCCS, and Katherine Cody, Psy.D., as they discuss news […]
The Autism Science Foundation invites applications for its Pre- and Postdoctoral Training Awards from graduate students, medical students and postdoctoral fellows interested in pursuing careers in basic and clinical research relevant to autism spectrum disorders. You can learn more about the fellowship requirements here. Applications are due December 3, 2018 at 5:00 pm EST.
On this week’s podcast, Dr. Tracy Yuen of University of Toronto and the Hospital for Sick Children explains two different analyses of cost-effectiveness which looked at 1) universal screening for ASD and 2) use of genomic sequencing to identify novel variants in people with ASD.
Videos of all the presentations at ASF’s 5th Annual Day of Learning held on April 11 are now available online. You can view them here. Topics include gender differences in autism, sleep problems in autism, the potential of medical marijuana as an autism treatment, adult outcomes, the role of dietary interventions, and the perception of […]
Filed under: adult outcomes, ASD, asf, Ashura Buckley, Autism, Day of Learning, Diet, featured, gender differences, intervention, John Spiro, Julie Lounds Taylor, medical marijuana, Michelle Failla, New York University, NIMH, nutrition, Orrin Devinsky, pain, Perception, research, science, Simons Foundation, Sleep, Somer Bishop, Susan Hyman, UCSF, University of Rochester, Vanderbilt University
On this week’s podcast, two chief science officers! Dr. Alycia Halladay interviewed Dr. Thomas Frazier of Autism Speaks on what’s needed to improve clinical trials and drug intervention for autism. The two CSOs also discussed other important in ASD research, including disclosure of a diagnosis, sex differences, and some of the newest more exciting findings.
The Centers for Disease Control and Prevention (CDC) estimates autism prevalence at 1 in 59 children based on data from the CDC’s Autism and Developmental Disabilities Monitoring (ADDM) Network – a tracking system that provides estimates of the prevalence and characteristics of autism spectrum disorder among more than 300,000 8-year-old children. The ADDM Network estimates […]
This week’s podcast is a mini-recap of the 5th Annual Day of learning. Hear what the speakers distilled in their TED-style talks on topics covered sleep, diet, and medical marijuana as a potential treatment for autism. Plus hear about the most recent ASF grantees.
The goal of the Autism Sisters Project is to build a large genetic database that researchers can use to explore the sex difference in autism diagnoses between boys and girls and discover how the potential protective factor, known as the female protective effect, can be harnessed to help people with autism of both sexes. NBC […]
On this week’s ASF podcast: By looking directly at the brains of people with autism, researchers at UC Davis MIND Institute, led by Dr. Thomas Avino and Dr. Cyndi Schumann, show a disruption of neuron number in the amygdala in autism. The amygdala is important because it is linked to emotion, fear and anxiety in […]
On this week’s podcast, the needs of #autism support staff are discussed. These important members of the community suffer burnout which can impact the quality of the services they provide individuals with ASD. A new study examines how to improve the psychological well being of autism support staff so interventions and prevention of burnout can […]