Research by Topic: Dup15q Alliance

Grant Opportunity for Families Affected by Infantile Spasms

Published October 28, 2019 in Dup15q Alliance

Since 2014, the Child Neurology Foundation has partnered with the Harnett Family in commemorating Infantile Spasms Awareness Week from December 1-7 by offering a $1,000 grant to a family impacted by infantile spasms. The grant was founded by Michael Harnett to honor the life and memory of his nephew, Brendan Michael Harnett, who passed away from infantile spasms before his first […]

https://dup15q.dm.networkforgood.com/emails/377483?

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AGENDA’s First Initiative is a Unified Registry of Family Data

Published October 17, 2018

Today, ASF announced that it will be leading the newly-launched Alliance for Genetic Etiologies of Neurodevelopmental Disorders and Autism (AGENDA). This alliance is a partnership of research and advocacy organizations focused on improving outcomes of individuals with all forms of autism by fostering a genetics-first approach to autism science. AGENDA will also work to strengthen […]

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