Research by Topic: registry

AGENDA’s First Initiative is a Unified Registry of Family Data

Published October 17, 2018

Today, ASF announced that it will be leading the newly-launched Alliance for Genetic Etiologies of Neurodevelopmental Disorders and Autism (AGENDA). This alliance is a partnership of research and advocacy organizations focused on improving outcomes of individuals with all forms of autism by fostering a genetics-first approach to autism science. AGENDA will also work to strengthen […]

Filed under: ASD, asf, Autism, collaboration, database, dup15q, Dup15q Alliance, featured, fragile X syndrome, FRAXA, FRAXA Research Foundation, genetic, Phelan-McDermid Syndrome, Phelan-Mcdermid Syndrome Foundation, PMSF, registry, research, Rett Syndrome, Rett Syndrome Research Trust, RSRT, science, SFARI, Simons Foundation, Simons VIP, subtypes, TSA, Tuberous Sclerosis, Tuberous Sclerosis Alliance

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SFARI Launches SPARK, Nation’s Largest Research Initiative for Parents, Children and Adults with Autism

Published April 21, 2016

SPARK (Simons Foundation Powering Autism Research for Knowledge) is a national autism research initiative that will connect individuals with a professional diagnosis of autism and their biological family members to research opportunities to advance the understanding of autism.   The project is now open to all families.  To read more, and to participate, go to www.sparkforautism.org.

Filed under: database, DNA, featured, registry, research participation, SFARI, SPARK

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