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Research by Topic: support
Autism Science Foundation Comments on Today’s CDC Data Showing Autism Prevalence Rate Rising to 1 in 54 from 1 in 59
Published March 26, 2020NEW YORK — March 26, 2020 — The Centers for Disease Control and Prevention (CDC) today announced that 1 in 54 eight-year old children have been identified with autism, a rise from the 1 in 59 rate announced two years ago. The increased prevalence rate announced today is based on a study of children who […]
Filed under: 1:54, ADDM, CDC, epidemiology, featured, Prevalence, support
Podcast: PMS – It’s not what you think
Published July 30, 2018On this week’s podcast, highlights from the Phelan-McDermid Syndrome Foundation 2018 International Family Conference in Dallas, TX. People with Phelan McDermid Syndrome, or PMS, suffer from seizures and intellectual disability, and about 70% have an ASD diagnosis. This syndrome is caused by mutations of the SHANK3 gene, which is present in about 1% of people […]
Filed under: asf, Autism, children, Family, featured, intervention, outcomes, Phelan-McDermid Syndrome, PMS, podcast, research, science, support
ASF’s 2018 summer intern shares her experience
Published June 13, 2018ASF’s summer intern Seowon Song shared her experience as an autism sibling on the ASF blog. In January 2016, she helped develop a support group for siblings of those with autism in South Korea named “Nanun”. The group published a book of their stories in March 2018. You can read the blog in English and […]
Filed under: acceptance, advocacy, asf, Autism, awareness, blog, featured, Siblings, South Korea, summer intern, support
Podcast: A sampling of science from the International Meeting of Autism Research
Published May 15, 2018This week’s podcast is a short summary of just a few of the presentations. There was more of an emphasis on what has been called “real life” research questions like employment, quality of life, and relationships. As a result, some of the more basic science questions around autism are now being presented at other meetings. […]
Filed under: asf, conference, featured, INSAR, International Society for Autism Research, podcast, research, science, services, support
Podcast: Supporting the support staff, at least a first step
Published January 15, 2018On this week’s podcast, the needs of #autism support staff are discussed. These important members of the community suffer burnout which can impact the quality of the services they provide individuals with ASD. A new study examines how to improve the psychological well being of autism support staff so interventions and prevention of burnout can […]
Filed under: ASD, burnout, featured, Kennedy Krieger Institute, podcast, support, uncertainty, well being