Research by Topic: support

Podcast: PMS – It’s not what you think

Published July 30, 2018

On this week’s podcast, highlights from the Phelan-McDermid Syndrome Foundation 2018 International Family Conference in Dallas, TX. People with Phelan McDermid Syndrome, or PMS, suffer from seizures and intellectual disability, and about 70% have an ASD diagnosis. This syndrome is caused by mutations of the SHANK3 gene, which is present in about 1% of people […]

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ASF’s 2018 summer intern shares her experience

Published June 13, 2018

ASF’s summer intern Seowon Song shared her experience as an autism sibling on the ASF blog. In January 2016, she helped develop a support group for siblings of those with autism in South Korea named “Nanun”. The group published a book of their stories in March 2018. You can read the blog in English and […]

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Podcast: A sampling of science from the International Meeting of Autism Research

Published May 15, 2018

This week’s podcast is a short summary of just a few of the presentations. There was more of an emphasis on what has been called “real life” research questions like employment, quality of life, and relationships. As a result, some of the more basic science questions around autism are now being presented at other meetings. […]

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Podcast: Supporting the support staff, at least a first step

Published January 15, 2018

On this week’s podcast, the needs of #autism support staff are discussed. These important members of the community suffer burnout which can impact the quality of the services they provide individuals with ASD. A new study examines how to improve the psychological well being of autism support staff so interventions and prevention of burnout can […]

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