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Developing a Gold Standard for Tracking Adult Functional Outcomes in Autism Spectrum Disorder

January 2021 - June 2023

One of the major methodological obstacles to more informed policies and programs to support the successful transition to adulthood in autism spectrum disorder (ASD) is the absence of suitable measures of functional outcomes for adults. Currently available options include (a) measures designed for children that largely fail to capture concepts pertinent in adulthood or (b) the use of broad, often dichotomous outcomes (e.g., employed or not) that are insufficiently sensitive for monitoring progress. We hope this study will demonstrate the potential of integrating the AFS into program outcome monitoring to inform future policies to support the successful transition to adulthood.

What are the goals of the study?

The objective of this project is to develop efficient and validated proxy and self-report measures of functional outcome for adults with ASD in the domains of employment, independent living, and social functioning, called the Adult Functioning Scale (AFS).

What will happen during the visit or online?

Online survey completion, 1-2 hours in length, may take breaks, receive $80 Amazon gift card upon completion

How will this help families?

More effectively guide individuals and their families to treatment at ages 18+ and avoid the current cliff or drop-off in measures and resources once an individual ages out of high school

Eligibility Criteria

US resident; access to Internet via smart phone, tablet or computer; able to read English at a 5th grade level or higher; either be a parent/caregiver of an individual age 18+ with ASD OR be an individual age 18+ with ASD.

View the study flyer here.

Contact Information

Katharine Zeglen, Project Coordinator – AFSstudy@upmc.edu

 

Research Study Website
REAACT Program University of Pittsburgh

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