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Managing Feeding and Sleep at Home

August 24, 2022 - August 31, 2023

What are the goals of the study?

The goal of this research study is to learn more about how families manage mealtime and bedtime routines at home.

What will happen during the visit or online?

Participants will be invited to complete several surveys online about their child’s health and behavior, their health as the child’s primary caregiver, and their family. We expect that the online surveys will take less than 90 minutes. Some participants will also be invited to participate in a virtual interview. In this interview, we will talk about how the family manages the day-to-day responsibilities of caring for their child. We expect that the interview will take about 60 minutes. As a part of this study, we will access the child’s electronic medical record to view medical information that is necessary to understand the child’s condition.

How will this help families?

For over a decade, autistic self-advocates and their families have asked scientists and clinicians to carry out more research that addresses the obstacles to a higher quality of life.

Eligibility Criteria

We are enrolling primary caregivers (18+ years old) of children who are 4-10 years old that are on the autism spectrum or have Down Syndrome.

View the study flyer here.

Contact Information
Research Study Website
Center for Autism Research at CHOP and University of Pennsylvania

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