What are the goals of the study?
The goal of this research study is to learn more about how families manage mealtime and bedtime routines at home.
What will happen during the visit or online?
Participants will be invited to complete several surveys online about their child’s health and behavior, their health as the child’s primary caregiver, and their family. We expect that the online surveys will take less than 90 minutes. Some participants will also be invited to participate in a virtual interview. In this interview, we will talk about how the family manages the day-to-day responsibilities of caring for their child. We expect that the interview will take about 60 minutes. As a part of this study, we will access the child’s electronic medical record to view medical information that is necessary to understand the child’s condition.
How will this help families?
For over a decade, autistic self-advocates and their families have asked scientists and clinicians to carry out more research that addresses the obstacles to a higher quality of life.