Share

Predicting Self-Care and Quality of Life in the Context of Parenting a Child with Autism Spectrum Disorder

April 27, 2023 - April 19, 2024

Western Michigan University psychology researchers are currently seeking parents of autistic individuals/individuals with autism spectrum disorder (ASD) who are receiving applied behavior analysis (ABA) treatment to participate in a study. Previous research has examined a range of parent, child, and contextual factors associated with quality of life and psychological wellbeing in parents of children with autism. However, to date, only a small number of studies have characterized both the self-care practices and the correlates of self-care in parents of children with ASD.

What are the goals of the study?

The purpose of the research is to learn more about parental self-care practices and factors related to caring for a child with autism that impact a parent’s quality of life and self-care.

What will happen during the visit or online?

Participants will be asked to complete an anonymous online survey. The survey should take approximately 20-minutes to complete.

How will this help families?

It is anticipated that the results of this study will further the field’s understanding of the self-care practices of parents of children with autism, potentially help us identify characteristics of parents who may be at particular risk for poor self-care, and ultimately may help identify supportive mechanisms that treatment providers may be able to provide for parents and caregivers.

Eligibility Criteria

Parents (specifically the primary caregiver) of an autistic individual/individual with ASD who is receiving applied behavior analysis (ABA) therapy may participate. Participants must be over the age of 18, must be able to read and write in English, must reside in the US, and must have access to a computer or mobile device and internet.

View the study flyer here.

Take the survey here.

Contact Information

Sarah Dacey – sarah.a.dacey@wmich.edu

Research Study Website
Self Care and Quality of Life in Parents of Autistic Individuals - Western Michigan University Dept. of Psychology
Head to Research Study Survey

More Research studies from this topic: Associated Disorders

Generating Effectiveness Mechanisms in RUBI (GEMs in RUBI)
In-person participation required
Autism-relevant profiles in neurogenetic syndromes
Online web-based study
Multi-Site Validation Study of Eye Tracking-Based Measure of Autism Symptom Severity
In-person participation required
Intranasal Vasopressin Treatment in Children with Autism
In-person participation required
Center for Brain Disease Diagnosis at the NRI
In-person participation required Online web-based study
Neural basis of social cognition in youth with ASD and psychosis
In-person participation required
Neurodevelopmental Sleep Study
In-person participation required
San Diego State University Toddler MRI Project
In-person participation required
Autism face fMRI
In-person participation required
Autism Intervention Research Network on Behavioral Health
Online web-based study
Simons Searchlight
Online web-based study
The Autism Biomarkers Consortium for Clinical Trials: Confirmation Study
In-person participation required
Aging in Autism
In-person participation required
Predicting and Optimizing Language Outcomes in Minimally Verbal Children with Autism Spectrum Disorder (POLO)
In-person participation required
Adolescent Communication of Emotion Study
In-person participation required
Social Motivation
In-person participation required
Pivotal Response Treatment for Children with Autism Spectrum Disorders
In-person participation required
Exploring Positive and Negative Dimensions in Autism Spectrum Disorders (EXPAND)
In-person participation required
ECHO
In-person participation required
Imaging Cognition and Neurodevelopment (ICAN)
In-person participation required
Infant-Caregiver Synchrony in Autism
In-person participation required
MRI Study for Prediction of ASD
In-person participation required
Walking and Talking in Autism
In-person participation required
What do you Eat?
Online web-based study
3q29 Deletion and Duplication Syndrome Phenotypes
In-person participation required
RARE-X Data Collection Program
Online web-based study
Cognitive Functioning in Children
Online web-based study
Multimodal investigation of emotional reactivity as a predictor of later psychopathology in infants at risk for ASD
In-person participation required
The Autism Biomarkers Consortium for Clinical Trials: Confirmation Study
In-person participation required
Pubertal, Psychosocial and Physiological Development in Females with Autism
In-person participation required
Investigating Depressive Symptomatology in Adolescents with ASD and ADHD
Online web-based study
Social Computations in Autism with Neuroimaging
In-person participation required
Social Dynamics and Early Visual Experiences
In-person participation required
Characterizing Electroencephalogram (EEG) Index of Plasticity of the Social Brain in Autism Spectrum Disorder
In-person participation required
Social Cognition in Brain and Behavior
Online web-based study In-person participation required
Sensory Reactivity and Regulation Development
In-person participation required
Neural Mechanisms of Cognitive Inflexibility in Autism Spectrum Disorder
In-person participation required
The neuroanatomical basis for face processing deficits in autism spectrum disorder
In-person participation required
Anxiety in Autistic Adolescents
Online web-based study
Following Language Growth in Autism at Home (FLASH)
Online web-based study In-person participation required
WATCH Motor Development Study: Advancing Screening Tools for ASD
In-person participation required
Family-Implemented Treatment for Behavioral Inflexibility (FITBI) Project
Online web-based study
The Investigation of Genetics Exome Research (TIGER-3)
In-person participation required Online web-based study
A Pilot Study of Transcranial Direct Current Stimulation (tDCS) in Children with Autism Spectrum Disorder (ASD)
In-person participation required
Research Studying Pimavanserin in Irritability Associated with Pediatric Autism Spectrum Disorder
In-person participation required
Assessing Functional Language Development via Telehealth
Online web-based study
Supporting nonverbal communication priorities for adults on the autism spectrum
Online web-based study
Mapping brain function in children with autism spectrum disorder with diffuse optical tomography
In-person participation required
Eye-tracking In-person Research
In-person participation required
Shape in Healthcare Study
Online web-based study
Self-reported internalizing disorders and social support in youth with autism spectrum disorder
Online web-based study
Generating Effectiveness Mechanism in RUBI (GEMs in RUBI)
In-person participation required
Effects of Identity on Masking Behavior
Online web-based study
Sleep in Children with Autism
In-person participation required
Aging in Autism
In-person participation required
Camouflaging/masking among females on the autism spectrum
Online web-based study
Test Elevation
Online web-based study
Investigating specific aspects of adjudicative competency in adults with autism spectrum disorder
Online web-based study
Speech Treatment for Minimally Verbal Children with ASD and CAS
In-person participation required
Bilingualism in Autism Spectrum Disorder: An Eye-Tracking Study
In-person participation required
Perceptions of Autism in a Digital Age
Online web-based study
The Experiences of Mothers Feeding Their Infants with Autism Spectrum Disorder
Online web-based study
The neural basis of third party social interaction perception in autism
In-person participation required
A pilot study of vagus nerve stimulation (VNS) for autonomic dysregulation in individuals with the developmental disabilities
In-person participation required
 Satisfaction with Social Support and Future Anxiety Among Hispanic Guardians of Children with Autism/Satisfacción con el Apoyo Social y Ansiedad Futura entre Tutores Hispanos de Niños con Trastorno de Espectro Autista
Online web-based study
Boosting Engagement and Skill Acquisition through technology and personalization: A pilot trial of enhanced transdiagnostic behavioral therapy 
Online web-based study
Identification of Biomarkers in Autism Spectrum Disorder (ASD) using Protein and Metabolite Profiling
In-person participation required
Study of the Facial Expression and Gaze of Children with and without Autism Spectrum Disorder
Online web-based study
Speech and Motor Assessment Remote Protocol (SMART)
In-person participation required
TARGETING THE NEUROBIOLOGY OF RESTRICTED AND REPETITIVE BEHAVIORS IN CHILDREN WITH AUTISM USING N-ACETYLCYSTEINE: RANDOMIZED CONTROLLED TRIAL
In-person participation required
Perceptions of Autism Spectrum Disorder: A Sociocultural Study
Online web-based study
Family Collaboration on Video-Learning
Online web-based study
GEMMA (Genome, Environment, Microbiome, and Metabolome in Autism)
Online web-based study
Theory of mind propensity in Schizotypy and Autism Spectrum
Online web-based study
Knowledge, Perceptions, and Use of Psychedelics among intellectually able adults with autism spectrum condition: An online survey.
Online web-based study
Autistic women’s experiences of alexithymia: an interpretative phenomenological analysis
Online web-based study
Adult Autism Sensory Research – The Vanderbilt Sound Sensitivity Study
In-person participation required
Exploring Virtual Group Acceptance and Commitment Therapy Format on Participation of Parents of Children with Autism
Online web-based study
The Impact of Hobbies on the Well-being of Autism in Adults
Online web-based study
G.I. Wanna Talk About Autism
Online web-based study
RICART Adolescent to Young Adult Study (RAYS)
Online web-based study In-person participation required
Cancer Screening for Patients With Intellectual Disability: Exploring Parent and Caregiver Perspectives
Online web-based study
Generating Effectiveness Mechanisms in RUBI (GEMs in RUBI)
In-person participation required
The Autistic Adult’s Perspective on Genetic Testing in the Prenatal and Cancer Settings
Online web-based study
Video Mediated Education
In-person participation required
Cognitive Aging in Mothers of Children with Autism Spectrum Disorder
Online web-based study