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The Experiences of Mothers Feeding Their Infants with Autism Spectrum Disorder

April 12, 2023 - October 12, 2023

A nursing PhD student at Vanderbilt University is looking for mothers of children with Autism Spectrum Disorder to share their experiences they had in feeding their child at the ages of 0-12 months. Feeding difficulties have been identified in older children with autism but few studies have looked at the feeding difficulties children with autism have before the age of 2 years old. Identifying infant feeding difficulties in autism may help with surveillance for earlier diagnosis and to better support mothers who are experiencing difficulties feeding their infant.

What are the goals of the study?

The purpose of this study is to investigate the feeding difficulties of infants who are later diagnosed with autism compared to their neurotypical sibling to identify any feeding characteristics that would warrant increased monitoring for autism in infancy.

What will happen during the visit or online?

One 30-45 minute online interview with a follow-up phone call or email if any additional information or clarification is needed regarding the information obtained in the interview. Participants will receive a $25 gift card for their time.

How will this help families?

This study may help inform better ways primary care providers (PCPs) ask questions at well child visits to identify infants that are experiencing feeding difficulties, improve PCP surveillance for neurodevelopmental delays in infants by assessing feeding, and improve PCP support for mothers experiencing difficulty feeding their infants.

Eligibility Criteria

Inclusion criteria:
1) English-speaking mothers 18 years of age and older who has a child with an Autism Spectrum Disorder diagnosis and had feeding difficulty at ages 0-12 months
2) Breastfeeding was initiated by the mother (no minimum duration of breastfeeding)
3) Mother has at least one other neurotypical child that does not have Autism Spectrum Disorder

Exclusion criteria:
1) Mothers of children born before 37 weeks gestation
2) Mothers of children with known chromosomal, physical defect, or additional medical diagnosis that may affect feeding behavior in infancy

View study flyer here

Contact Information

Amy Campbell – amy.a.campbell@vanderbilt.edu

Research Study Website
Vanderbilt University School of Nursing

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