Participate in Research

Participate in Research

Autism is currently the fastest-growing developmental disorder in the United States, with the CDC reporting that 1 in 44 children in the United States is diagnosed with an autism spectrum disorder. Research is the only way we can continue to improve the quality and effectiveness of treatments for people with autism across the lifespan.

Research about autism requires people with autism and their families to participate. By participating in research you will not only be helping your own family, but thousands of families around the world. There is so much we need to learn. Please take some time to learn more about research opportunities in your area or online. Research is the key to unlocking critical data about the causes of autism and to developing new and effective treatments.

If you have a study that you would like to be posted, please fill out this form.

Research Opportunities

Online Participation

01/27/2022 – 01/25/2024

Drs. Inge-Marie Eigsti and Stormy Chamberlain are doing a research study of social communication and motor skills in people with autism with co-occurring intellectual disability, and/or genetic disorders of Chromosome 15. Participation is completely online, and consists of a 40-60-minute parent-report survey about your child’s social communication and motor skills. We may ask for results from previous psychological or genetic evaluations. Families will receive a $30 Amazon gift card for participating. Learn more here.

Eligibility Criteria
We invite individuals ages 3-80 with Angelman syndrome, Dup15Q syndrome, or autism spectrum disorder and co-occurring intellectual disability to participate. Individuals with Angelman or Dup15Q syndrome must not be enrolled in a clinical trial of disease-modifying therapeutics, such as antisense oligonucleotides (ASOs). Participants must have a caregiver who can provide information about them, and access to a computer with an internet connection.

Contact Information
Questions? Contact Elise Taverna at angelman@uconn.edu

Yale University

July 1st, 2017 – July 1st, 2022

The ACE Program supports large-scale multidisciplinary studies on ASD with the goal of determining the disorders’ causes and best practices for early diagnosis, treatment and intervention. Prenatal and neonatal enrollment provides follow-up developmental evaluations from birth to 24 months; school aged participants receive age appropriate assessments and developmental evaluation. All families receive feedback with Child Study Center clinical staff. For more information, please visit https://medicine.yale.edu/lab/chawarska/autismcenter/.

Eligibility Criteria
We are currently recruiting: (1) pregnant mothers who already have one child with or without Autism Spectrum Disorder (ASD) (2) newborn siblings of children with or without ASD (3) school-age siblings of children with or without ASD

Contact Information
For more information or questions, please email evelyn.pomichter@yale.edu

Online Survey

September 1st, 2018 – August 31st, 2022

Do you have a child with an autism spectrum disorder? Do they have sleep problems? Would you like to participate in our current research study?

We are looking for families to participate in our research study of parent training as a tool in treating sleep problems in young children with autism spectrum disorder. This study is designed for parents of preschool age children (ages 2 years to less than 7 years old) with ASD who are also displaying bedtime or sleep problems. The purpose of this study is to determine if our parent training program and parent education program are acceptable and helpful to parents. As part of the study you and your child will be required to complete questionnaires, document sleep habits and attend five sessions all using telehealth technology. The possible benefits of participation in this study are the improvement of your child’s sleep and bedtime behaviors.

Eligibility Criteria
– Child must be between 2 and less than 7 years of age.
– Child must have a diagnosis of Autism Spectrum Disorder.
– Child must have bedtime or sleep disturbance.

Contact Information
If interested, please contact autismresearch@ccf.org or 216-448-6392

Online Survey

April 1st, 2019 – December 31st, 2022

There is an urgent need for improved access to effective autism treatments. With advances in technology, distance learning models have particular promise for families who cannot access evidence-based parent training locally or may be on long wait-lists for behavioral treatments. Pivotal Response Treatment (PRT) is an established treatment for autism spectrum disorder (ASD); however, a telehealth PRT model has not yet been evaluated in a controlled trial. This study will examine the effects of training parents in PRT via secure video conferencing and investigate 1) whether parents can learn via telehealth to deliver PRT in the home setting (PRT-T) and 2) whether their children will show greater improvement in functional communication skills compared to children in a waitlist control group. Participants will include 40 children age 2 to 5 years with ASD and significant language delay. Eligible children will be randomly assigned to either PRT-T (N=20) or waiting list (N=20). Weekly 60-minute parent training sessions will be delivered for 12 weeks via secure video conferencing software by a PRT-trained study therapist. The effects of PRT-T on parent fidelity of PRT implementation, child communication deficits including frequency of functional verbal utterances, and parent-report of communication skills on standardized questionnaires will be evaluated. This research will provide a foundation for wider dissemination of technology-based solutions to improve access to ASD treatment.

Eligibility Criteria

  • Children 2-5 years old
  • Diagnosed with ASD (based on history, review of available medical records and confirmed with Autism Diagnostic
  • Interview-Revised (ADI-R; completed by phone)
  • Significant adaptive communication deficits (i.e., Vineland-3 Communication subscale <70)
  • Able to vocalize with communicative intent during home video observation
  • With an English-speaking parent able to consistently participate in study procedures.

Exclusion Criteria

  • Parent or child diagnosed with severe psychiatric disorder or unstable medical problem
  • Child participating in more than 15 hours per week of 1:1 ABA treatment at home
  • Parents without computer/internet access
  • Children with an unstable medical condition such as severe seizures

Contact Information
Please contact Robin Libove at rlibove@stanford.edu or Grace Gengoux at ggengoux@stanford.edu for more information.

Infancies Studies Laboratory at Rutgers University-Newark

November 1st, 2020 – October 31st, 2022

Younger siblings of children with ASD are known to be at higher risk for developing language delays. The Infancy Studies Lab at Rutgers University-Newark has created an engaging interactive acoustic experience with the aim of helping baby sibs of children with ASD develop better pre-language skills known to be important for optimal and efficient language acquisition.

The study begins at age 4 months and compensation up to $400.00 will be provided for study completion. For more information, please email us at babylab@newark.rutgers.edu, or visit the ISL website: https://www.babylab.rutgers.edu/current-studies and watch a video https://youtu.be/OSZJrnsw7jw

Eligibility Criteria
Babies between 0 and 4 months who have older siblings who have been diagnosed with autism, from English-speaking families.

Child Mind Institute – NYC

February 12th, 2021 – September 29th, 2022

Do you have concerns about your child’s development, social and/or language skills that may be related to related to autism? The Child Mind Institute’s Autism Center is currently recruiting participants for a NIMH-funded study on the relationship between brain development and behavior in very young children with Autism.

The study will combine clinical assessments with brain MRI administered during natural sleep. MRI is a safe, non-invasive method of looking at the brain and does not involve any exposure to ionizing radiation. The clinical assessments consist of parent interviews, as well as play-based language and social skills assessments of the child. Participating families will be compensated up to about $180 each year. Each year families will receive a written summary report detailing the results of testing, a diagnosis, if there is one, and related treatment recommendations.

To conduct our research safely during COVID-19, we combine approved and protected in-person visits, such as child observations and MRI scans, with virtual parent interviews and questionnaires. We continue to carefully monitor the pandemic development in the New York City area, adhere to CDC guidelines and adjust our protocols accordingly.

Eligibility Criteria
– Age between 18 and 38 months
– Walking independently at the time of study enrollment
– Parent/guardian must speak fluent English
– Prospective participants will be screened for any other potential exclusion criteria during the first phone call

Contact Information
Families interested in participating in the study should contact autism.center@childmind.org or call 917-472-1813 for more information.

Seaver Autism Center – New York, NY

June 28th, 2021 – June 28th, 2022

The Seaver Autism Center at Mount Sinai is seeking participants for a research study to help understand sensory and perceptual functioning in adults with autism spectrum disorder. The study will involve all non-invasive tasks, which may include computer testing, electroencephalography (EEG), and an fMRI. Diagnostic and clinical testing may also be updated during the study. Study participation will involve 2 visits to the Seaver Autism Center, each lasting approximately 3 hours. Participants will be compensated up to $150 for participation, and can be provided with a comprehensive report of all clinical testing free of charge.

Eligibility Criteria
Adults aged 18-50 with a diagnosis of autism spectrum disorder (ASD) or adults without any developmental or psychiatric concerns are eligible to participate.

Contact Information
If you are interested in participating, or know someone who might be interested, please contact Sarah Barkley at fossfeiglab@mssm.edu.

Online Survey

August 19th, 2021 – August 19th, 2023

The Your View Study Enrolling now! What is involved? Families will receive a kit mailed to their home with head-cameras, headbands, and instructions. Parents and their children will wear the head-cameras and record their daily activities for up to 4 hours across 1 week. Parents will also be asked to fill out questionnaires online. Families will be compensated with a $60 amazon gift card for their time.

Eligibility Criteria
Families with children between 2-5 years of age who:
• are on the autism spectrum,
• have Down Syndrome, or
• are typically developing.

Contact Information
Are you interested or have questions? Contact us at maclab@purdue.edu

Online or In-Person

September 1st, 2021 – August 21st, 2022

This study is evaluating the efficacy of a 12-week mental health treatment designed to help with symptoms of depression. Through the study you will complete 12 therapy sessions (option online or in-person). If you participate, you will be compensated up to $150 for completion of assessment visits. For more information, click here: redcap.link/depressiontreatment

Eligibility Criteria
You may be eligible for you are at least 18 years of age, have a previous diagnosis of autism spectrum disorder, live in NY, NJ or can travel to Rutgers University, and have someone who will participate with you (e.g., parent, sibling, friend).

Contact Information
For more information, please email lifespanlab@gsapp.rutgers.edu.

In-person study at Yale University

September 20th, 2003 – April 30th, 2023

The McPartland Lab at the Yale Child Study Center is studying behavior and brain systems to better understand the social difficulties that are often experienced by people with autism spectrum disorder and intellectual disability.  Our studies use EEG and eye tracking technologies to measure brain function while using behavioral tasks to examine social, communication, and emotional skills.

Participation involves one or two visits to our lab where individuals will talk to a clinician, complete questionnaires, and watch videos while their brain waves and movement are recorded. Participants will receive a clinical evaluation and report as well as compensation up to $120.  For more information, please visit: https://medicine.yale.edu/lab/mcpartland/research/participate/

Eligibility Criteria
Currently recruiting children between the ages of 6 to 18 years old with either a diagnosis of autism spectrum disorder, intellectual disability, or typically developing.

Contact Information
For more information, please contact Erin MacDonnell, autism@yale.edu, call 203-737-3439 or fill out this brief form.

Online Survey

January 5th, 2022 –  January 5th, 2023

We would like to make you aware of an opportunity to participate in Cognoa’s Survey Titled Caregiver Journey: Autism Diagnostic Experience in the Medical and Educational Pathways. Cognoa is  looking for a broad range of participants across age, ethnicity and geographic location in order to gather valuable and varied insights that truly represents the ASD community’s perspective during their diagnostic journey.  The survey is anonymous as no identifying data or personal health information will be asked . Cognoa is seeking participants who will be comfortable sharing their experiences around their pathway to diagnosis. Participation is completely voluntary, you can skip any question you chose not to answer and it should take roughly 20 mins to complete

The goal of this survey is to better understand the diagnostic journey of caregivers and their families.  The following themes will be addressed during the course of the survey:

  1. Better understanding of diagnostic systems for ASD
  2. Perception of bias in the current standard of care.
  3. Understand how caregivers want to receive educational information about resources and support for their family.

If you are interested in sharing your experiences, please follow the link here to the survey https://www.research.net/r/KCR6M22

 

In-person at SUNY Downstate University Hospital of Brooklyn

January 1, 2021 – July 21, 2022

The primary aim of this study is to evaluate the effect of a liquid form of leucovorin calcium on language impairments in very young children with ASD. Leucovorin calcium is a compound similar to folic acid a necessary vitamin. The study is a 24-week 2-phase study, which means that all participants receive the study treatment in the open-label phase. For more information, please visit: https://clinicaltrials.gov/ct2/show/NCT04060017

Eligibility Criteria
2.5-5 year old children with an autism diagnosis currently receiving some amount of ABA therapy per week.
Contact Information
Email daniel.mishan@downstate.edu or call the Child Development Clinic at Downstate 718-270-2272

Online Survey

October 29, 2021 – October 29, 2022

Are you the parent of a child with Autism Spectrum Disorder aged 13-45? We want to know more about you and your relationship with your child. This study will be done all online and if you agree you will complete an online consent form, complete 2 online questionnaires that will take about 30 minutes and do a short 10- minute recorded ZOOM interview with a Vanderbilt student to find out more about you and your child. There is no payment but will send study results when complete in a short feedback report so you can see what we found.

Eligibility Criteria
Parents of children with Autism Spectrum Disorder age 13-45.

Contact Information
For more information contact Elizabeth Roof at 615-343-3330 or Elizabeth.roof@vanderbilt.edu

Online Research Study

November 1, 2021 – June 1, 2022

Researchers from the UNLV Teaching & Learning Department are looking for volunteers to participate in an online research study on a learning intervention that uses eye-tracking technology to assess and guide the social attention of young children while watching videos with social scenes.

The study is completely online, so parents and their children can participate remotely from any location.

Child Participants will watch videos online of social scenes without and with a learning intervention, be recorded by a webcam and an online eye-tracking platform while watching the videos, and answer survey questions to evaluate the videos at the end of the study. The total participant time for child participants over the course of the 5 to 8 week study is approximately 7 hours.

Parent Participants will monitor their child’s participation in the 15-minute study sessions, participate in a video conference session with the study investigator, and complete several surveys and assessments. The total participant time for parent participants over the course of the 5 to 8 week study is approximately 8 hours.

Teacher/Therapist Participants will complete an online assessment of the child participant’s social skills and social deficits and an online survey evaluating video demonstrations of the learning intervention. The total participant time for teacher/therapist participants is approximately 1 hour. For more information please visit:  https://unlv.co1.qualtrics.com/jfe/form/SV_9YagSDuc8Z5EYbc?Source=ASF

Eligibility Criteria

  • Inclusion criteria for child participants: Participants who are 2 to 8 years old who are typically developing (i.e., having no known disabilities) or who have autism spectrum disorder; and who have no reported learning disabilities, intellectual impairments, mental health disorders; no impairments in vision and hearing; does not require the use of glasses; has basic technology requirements to participate in the study (i.e., PC or laptop with a webcam, web browser, and Internet connectivity); and is available to participate in daily 10 to 15 minute online sessions approximately 5 times per week for a period of 5 to 8 weeks.
  • Inclusion criteria for parent participants: Parent of a child participant in the study.
  • Inclusion criteria for teacher/therapists: Currently teaching and/or providing therapy to a child participant in the study.

Contact Information
For more information, please contact Catherine Bacos at catherine.bacos@unlv.edu

In-person at Boston Children’s Hospital

January 1, 2022 – March 1, 2025

The goal of the BRIDGE Study is to better understand how differences in brain activity affect learning, language, and behavior in children with Autism Spectrum Disorder, Fragile X Syndrome, and Down syndrome. Our study involves 2 visits at the Labs of Cognitive Neuroscience at Boston Children’s Hospital. Each visit includes clinical and behavioral assessments that will evaluate your child’s thinking, motor skills, language skills, and social communication. In addition, we will measure your child’s brain activity using electroencephalography (EEG). EEG is a safe and radiation free way to measure brain activity in response to different sounds and pictures. After each visit, families will receive a written report about their child’s development, a small toy and $50. We also provide free parking and child-care for siblings. Reimbursement for travel is available. For more information, visit https://www.childrenshospital.org/research/labs/wilkinson-lab/our-research/current-studies

Eligibility Criteria
Boys between 2 and 5 years old with Autism Spectrum Disorder & language delays.

Contact Information
For questions, please email BRIDGEstudy@childrens.harvard.edu or call (617) 919-6619.

Online Survey

03/24/2022 – 03/24/2023

We are currently recruiting children and adults on the spectrum to complete this survey on symbols and language. The survey takes no more than 15 minutes and you will be compensated with an Amazon gift card for your time. The survey can be found here.

Eligibility Criteria
All children and adults on the Autism Spectrum are welcome.

Contact Information
For questions, please email Nicole Cuneo at nicole.cuneo@princeton.edu

Online Survey

03/01/2022 – 05/26/2023

Does your child have Autism Spectrum Disorder and Avoidant Restrictive Food Intake Disorder? To improve treatment outcomes and better understand ARFID and ASD, we want to learn more about the symptoms and presentations of this dual (occurring at the same time) diagnosis!

What will I do in this study? Fill out 2 online surveys about your child’s eating behaviors and sensory processing patterns. You will be compensated with a $15 gift card of your choice after completing this study.

How can I participate or learn more? To start the first survey click here: https://stmarysca.az1.qualtrics.com/jfe/form/SV_dh7fhiRW3FT358G 

Eligibility Criteria
– You are the parent or legal guardian of a child between the ages of 4 and 15 years old.
– Your child has a current diagnosis of both ARFID and ASD.
– You can read English fluently and you currently live in the US.

Contact Information
To learn more information, email Lucy Wetherall at lw20@stmarys-ca.edu

Online Survey

November 2021 – January 2023

Researchers at Seattle Children’s are looking for caregivers of 3 to 14 year old children with a neurodevelopmental disability (such as but not limited to ASD; ADHD; Down’s syndrome, intellectual disability; speech; language or learning disorder; or cerebral palsy) or a chronic health or neurological condition (such as but not limited to diabetes, asthma, congenital heart disease, CF, craniofacial or physical differences, epilepsy that require increased health monitoring) to take part in an online survey study. The goal of this study is for families to tell us about their experience with telehealth and in-person services during the coronavirus pandemic. Parents will complete an online survey (about 20 minutes) about their child’s care experiences during coronavirus. We will ask for recommendations for modifications. 200 participants will be entered into a lottery. 40 participants will win a $25 gift card. you can see what we found.

The study can be accessed at the following link: PPE TIPS Survey

Eligibility Criteria
This study might be a good fit for you if:
• You read/write in English or Spanish.
• Have a child with a neurodevelopmental disability or chronic health condition.
• Your child is between the ages of 3 to 14 years.
• Experienced stay at home orders during coronavirus.

Contact Information
For more information contact ppetips@seattlechildrens.org

Online Survey

04/13/2022 – 05/12/2023

Autistic people have skills and assets they may use to help them with everyday challenges. We want to learn more about the strategies autistic people use in their day-to-day lives.

This study involves completing surveys online. The surveys will take about 60 minutes. The surveys do not need to be completed all at once.

Participants will be compensated a $10 Amazon electronic gift card at study completion.

Eligibility Criteria
You may quality for the Compensation Skills in Autism study if you:
● Are on the autism spectrum (for example, Autism, Asperger’s syndrome, Pervasive Developmental Disorder, etc.), whether self-diagnosed or diagnosed by a health/educational professional
● Are at least 18 years old
● Do not have a diagnosis of an intellectual disability (Note: this does not include a learning disability, such as dyslexia)

Contact Information
If you are interested in participating in this study, please email ladn@gwu.edu

Yale University, New Haven CT

May 2022 – December 2025

The McPartland Lab at the Yale Child Study Center has a clinical study available that examines your child’s social, communication, and cognitive skills. This research will lead to new methods to develop, track, and assess treatments in Autism Spectrum Disorder (ASD). You will receive a psychoeducational evaluation describing your child’s development over six months as well as compensation up to $300 for participating in the study.

Eligibility Criteria
We are currently recruiting both typically developing children and children with a diagnosis of autism spectrum disorder between the ages of 6 to 11 years old.

Contact Information
To learn more about our study or to participate, please call us at 203-785-6108 or email our team at abc-ct@yale.edu

 

Yale University, New Haven CT

January 2022 – January 2025

The McPartland Lab at the Yale Child Study Center is offering a study that looks at how Transcranial Magnetic Stimulation (TMS), a non-invasive form of brain stimulation, can influence social brain activity. TMS has been approved as therapy for other conditions and we would like to see if it can also help those with autism.

A participant visit includes a baseline assessment of neuropsychological, cognitive and behavioral function and an EEG and eye-tracking session to measure visual and social responses before and after TMS. Compensation is $100 per visit and participation consists of 2 visits.

Eligibility Criteria
We are recruiting adults between the ages of 18 to 40 years old with either typical development or who have been diagnosed with autism spectrum disorder.

Contact Information
To learn more about the study or to participate, please call 203-737-3439 or email our team at autism@yale.edu

Lurie Center for Autism, Lexington MA

9/8/2021 – 12/31/2022

The Lurie Center for Autism of the MassGeneral Hospital for Children is conducting a research study to evaluate the association of the gut microbiome with autism spectrum disorder (ASD) in children between the ages of 3 and 14 years old who have been diagnosed with ASD. Siblings and family members without ASD who are between the ages of 3 and 21 years old may also be enrolled into the study. Taking part in this study will involve 2 remote or in-person screening visit at the Lurie Center. All study-related procedures and evaluations will be provided at no cost to you. Participants will be compensated for their time.

Eligibility Criteria
ASD group: between 3-14 years old with ASD diagnosis
non-ASD group: between 3-21 years old with sibling with an ASD diagnosis

Contact Information
If you would like more information about this study, please contact the research staff at: 781-860-1711 or LurieCenterResearch@partners.org

Lurie Center for Autism, Lexington MA

1/1/2022 – 12/31/2022

The MassGeneral Hospital for Children at the Lurie Center is currently recruiting for a research study that will evaluate the safety and efficacy of an investigational medication, cannabidiol, for improving behavior, social communication, and overall symptom severity in children and adolescents with an autism spectrum disorder.

Eligibility Criteria
Participants must be:
· Between the ages of 6 and 17 (inclusive)
· Diagnosed with an autism spectrum disorder with irritability

Contact Information
For more information, please contact Dr. Neumeyer’s research team at 781-860-1711 or LurieCenterResearch@partners.org

Online Survey

May 2, 2022 – June 2, 2022

The purpose of the study is to investigate if there is a difference in post-secondary sexual self-efficacy and sexual self-concept outcomes among transitioning youth with autism spectrum disorder. This study is being conducted to add to the understanding of autism as a disability, the specific barriers of sexuality, and how those barriers effect the autism population’s transition to adulthood. You can take the survey here: https://liberty.co1.qualtrics.com/jfe/form/SV_1yI4C7ssN9NdbxQ

Eligibility Criteria
Participants must be 18 to 27 years of age with a diagnosis of level one or level two autism spectrum disorder and are no longer enrolled in secondary school.

Contact Information
If you have any questions, please contact Tatum Williams at tmwilliams7@liberty.edu