Share

UCLA Autism Genetics Research Study for Black Families

What's the study about?

UCLA’s Autism Genetics and Human Diversity study focuses on increasing representation of black families in autism genetic research. African Americans make up 14 percent of the US population, but less than 10 percent of the individuals who have participated in genetic studies. We and others have growing evidence that the genetic risk factors contributing to ASD in Caucasian families don’t influence ASD the same way in black families: they may be the same genetic factors but have weaker effects, or they might be different genetic factors. We need more black families to participate in research so that we can learn which genetic factors for autism risk are unique to people of African descent and which are the same in all people.

Who can participate?

  • African American or Black (biracial is included)
  • Ages 3 and up with an autism diagnosis or suspected
  •  Has no known genetic disorder (other than 16p and 15q mutations)
  • Has never participated in a genetics study on autism


What will participants be doing?

You will be asked to complete questionnaires and interviews regarding your child’s medical history, behavior, social skills, and communication skills. Your child will undergo some behavior and cognitive (intelligence) testing. A blood sample will be taken from your child, biological parents, and any sibling older than 3. For our out-of-state families, we collect saliva.

A behavioral assessment feedback report with child’s assessment scores and compensation of $250.00 upon completion of all study requirements.

Why is this important?

Identifying the genes contributing to ASD in Black families lays the groundwork for future studies that can develop new interventions and treatments and tells us more about the biology of autism. Join UCLA’s Autism Genetic and Human Diversity research study to increase representation of Black families in autism genetic research.

More Research studies from this topic: Interventions

SHAPE in Healthcare Study
Fully remote/online
Adolescent Communication of Emotions Study (ACES)
In-person participation required
Growth Hormone Clinical Trial for Kids with ASD
In-person participation required
Social Computations in Autism with Neuroimaging
In-person participation required
Brain Indicators of Developmental Growth (BRIDGE)
In-person participation required
Neural basis of social cognition in youth with autism and psychosis
In-person participation required
Sensory processing and Executive functioning Neuropsychological impact on Sleep Efficiency (SENSE) Study
In-person participation required
More and Less Social Comprehension
In-person participation required
Parent Coaching Research Study for Repetitive or Inflexible Behaviors (The FITBI Study)
Fully remote/online
At-Home “Baby Sibs” Study
Fully remote/online
Understanding Autism: Exploring Genetic, Environmental, and Biological Factors in Siblings
Fully remote/online
Participant Database for Persons Interested in Research Studies of Developmental Disorders
In-person participation required
Assessment of Parenting Styles and Preferences
Fully remote/online
Sleep and Sleep Hygiene of Adolescent Siblings
Fully remote/online
Development of a support program for autistic adults and their caregivers
Fully remote/online
Social Information Processing & Mental Health in Autism
Fully remote/online
Decoding Diversity: Exploring Nonverbal Communication Between Neurotypes
In-person participation required
The Flexible Thinking Study
In-person participation required
Measuring Communication and Interaction in Autism
Fully remote/online
Infant Emotional Development Study
In-person participation required
Youth Social Skills Treatment Study
In-person participation required
A study of an investigational medication for social communication deficits in Autism Spectrum Disorders
In-person participation required
Examining the Relationship of Social Determinants of Health and Healthcare Utilization in Adults with Autism Spectrum Disorder
Fully remote/online
Simons Searchlight
Fully remote/online