RISE

In this study, we are interested in understanding how infants learn about their world from their response to child-friendly videos they can watch at home. For example, we know from studies in the lab that many babies enjoy looking at social stimuli and are able to remember faces they have seen before. In this study, we are testing to see what we can learn about your babies cognitive development at home. This work may help us identify children with developmental delays in the future. To participate, you and your baby will watch a series of videos on your home computer. We will also ask you to answer questions about your child’s development.

What are the goals of the study?

We want to understand how babies look at and learn from the patterns in the world around them. This is part of a larger study we are running to understand how typically developing babies might learn about their world in different ways than babies with developmental delays.

What will happen during the visit or online?

In this study, your baby will see a series of videos while we record how they respond. These videos include children playing, geometric figures, objects, and patterns. After the videos, we will ask you to complete some surveys within the LookIt platform, and some will be sent to you later. These surveys are common in infant research and cover many different areas of development. You can follow the links below to learn more about each survey. Communication and Symbolic Behavior Scales (CSBS) Infant-Toddler Checklist measures the social communication, expression of speech and language, and symbolic abilities of children ages 6 months to 2 years. MacArthur-Bates Communicative Development Inventories measures communication and language development in babies and toddlers from 8 to 37 months (about 3 years) of age. Motor-Libertus Early Motor Questionnaire (EMQ) measures the development of early motor skills (such as raising and holding their own head, rolling over, and crawling) in infants and toddlers. Vinland and Adaptive Behavior Scale (VABS) measures communication and social relationships in infants and toddlers to understand home and family-life behaviors. Modified Checklist for Autism in Toddlers (M-CHAT) (only at completed for 18-month-old children) screens for signs of autism spectrum disorder in toddlers.

How will this help families?

This work may help us identify children with developmental delays in the future.

We are inviting autistic adults who have limited verbal communication to participate in a research study that includes 12 weeks of therapy. This would be helpful for people who are struggling with “feeling down”, which can be seen as low or sad mood, change in motivation to participate in activities, and change in sleep. 1-2 people who support the adult would join in the therapy to provide support and learn, as well.

What are the goals of the study?

This study is adapting a mental health treatment for people with intellectual disability to meet the needs of minimally verbal autistic adults.

What will happen during the visit or online?

The participant will complete 12 therapy sessions and assessment visits to check in how they are doing along the way. The 1-2 people who come with them to support and learn will also participate

How will this help families?

This study is about a mental health treatment for minimally verbal autistic adults.

My name is Molly, and I am a doctoral student at the Ferkauf Graduate School of Psychology in New York. I am conducting my doctoral research on parental accommodation in ASD. If you have a child with ASD between the ages of 5 and 18, please consider participating in this quick 10-15 minute online study. I have a passion for working with individuals with ASD and have been involved in Autism-related research for the last 6 years. Participation in this research project will provide the scientific community with valuable information about ASD.

What are the goals of the study?

My name is Molly, and I am a doctoral student at the Ferkauf Graduate School of Psychology in New York. I am conducting my doctoral research on parental accommodation in ASD. If you have a child with ASD between the ages of 5 and 18, please consider participating in this quick 10-15 minute online study. A $2 donation to the Autism Self Advocacy Network will be made in honor of your participation and you will be providing the scientific community with valuable information about ASD. This research project was reviewed and received an exempt determination by WCG IRB. Thanks in advance for your time and consideration. https://tinyurl.com/FARLabASD

What will happen during the visit or online?

You will be asked to complete questionnaires about your child’s symptoms, how their symptoms impact the relationships in your family, and the extent to which you are involved in assisting your child when they are experiencing symptoms.

How will this help families?

Research results will provide the scientific community with valuable information about ASD.

Research has described difficulties in recognising other people’s emotions in people with autism. Until now, however, there are few efficient and reliable methods for identifying these difficulties. Together with the University of Zurich, the Swiss Epilepsy Centre is developing the COSIMO online test to fill this gap.

What are the goals of the study?

Through this study we can further develop the COSIMO test and advance our knowledge of emotion recognition in people with autism.

What will happen during the visit or online?

In this anonymous online study you will be tasked with identifying emotions portrayed in short film sequences and still images of the eyes. It will take approximately 10-15 minutes to complete.

How will this help families?

Difficulties in recognising other people’s emotions have important implications for the social life of affected individuals. Identifying potential difficulties with emotion recognition has been found to be relevant for therapeutic interventions in Autism Spectrum Disorders, in order to improve possible difficulties with work or other relationships.

The purpose of this study is to investigate the neural mechanisms associated with visual and social perception in adults with and without autism. Participants complete a 2-hour MRI scan during which they watch a full episode of the BBC show “Sherlock”, a memory recall task which requires them to summarize the episode in their own words, a brief IQ assessment, and five questionnaires. Participants are compensated with a $120 VISA gift card.

What are the goals of the study?

The long-term goal of this research is to understand the neural basis of social interaction perception in controlled and naturalistic contexts, and differences associated with underlying neural mechanisms of autism.

What will happen during the visit or online?

Research appointments at our Center in Baltimore, Maryland are scheduled Monday-Friday. Appointments are approximately four hours. Participants complete a 2-hour MRI scan during which they watch a full episode of the BBC show “Sherlock”, a memory recall task which requires them to summarize the episode in their own words, a brief IQ assessment, and five questionnaires.

How will this help families?

This research will enable clinicians to better understand the neural underpinnings of autism-related symptoms and inform therapies, such as social skills trainings, to more effectively target differences.

Researchers at Rutgers University are conducting a research study to evaluate a 10-session telehealth-based group therapy program.

What are the goals of the study?

The purpose of this study is to evaluate the feasibility, acceptability and effectiveness of an adapted telehealth Group Behavioral Activation Therapy (GBAT+) for autistic adults. GBAT+ is intended to help adults manage stress, anxiety, low moods, and anger.

What will happen during the visit or online?

Eligible people will be asked to complete questionnaires, 5 individual assessment visits, and 10 group therapy sessions.

How will this help families?

Participants will receive 10 group therapy sessions and be compensated up to $230 for completion of assessments.

The current study is being conducted by Drs. Knutson, Viskupic, and Wiltse from South Dakota State University. This is a collaborative initiative to gain insight into various areas impacting the autism community. Dr. Knutson is a clinician having worked with autistic individuals and families for 15+ years. Drs. Viskupic and Wiltse are political scientists who examine attitudes and behaviors surrounding the COVID-19 pandemic. Key points to the study: Prevalence and impact of head-directed self-injurious behavior – Attitudes surrounding supportive equipment – Impact of COVID-19 on access to treatment and healthcare choices.

What are the goals of the study?

Our goal with this study is to gain critical information impacting families who have a loved one with autism. By gathering this information, we hope to improve individual safety, treatment options, treatment accessibility, and policy change supporting family needs.

What will happen during the visit or online?

Participating means completion of an online survey through QuestionPro. You may skip any questions you do not want to answer. We anticipate it will take about 10 minutes of your time.

How will this help families?

These data will assist us in supporting families and individuals impacted by autism, head-directed self-injury, the development of supportive equipment to better protect individuals and guide treatment, and to understand how the recent worldwide COVID-19 pandemic impacted this population to support policy/planning.

My name is Samri and I am a research participant recruiter from Miami University’s Later Language Development Lab. I am reaching out to you today with the opportunity to contribute to our NIH-supported research on the development of a social communication assessment tool which targets adolescents and young adults at the age of transition. We are currently seeking participants between the ages of 14 and 21 years old with a native proficiency in English and typical hearing. We are asking that participants meet one-on-one with a member of our research team for 1-1.5 hours via Zoom to answer a series of interview questions which probe their knowledge of how to communicate in different contexts. After, the participant will be paid the sum of $30-50 via Zelle for their involvement. This study is being conducted by Dr. Trace Poll from the Speech Pathology and Audiology Department at Miami University alongside Jan Petru from Elmhurst University, who is acting as our clinical consultant for the study.

What are the goals of the study?

Specifically, we are continuing research on our development of a social communication assessment tool tailored to adolescents and young adults preparing for the transition from high school to post-school contexts. This tool that we are developing is called the Transition Pragmatics Interview (or the TPI).

What will happen during the visit or online?

This commitment includes the signing of a consent form, the completion of a brief history form, and a 1-1.5 hour meeting via Zoom to answer interview questions probing their knowledge of how to communicate in different situational contexts.

How will this help families?

The information from this project provides information on the degree to which the TPI is a valid and reliable measure of social communication. Speech-language pathologists, special educators and related professionals currently lack assessment instruments that address the population and contexts targeted by the TPI. The project will indicate how the TPI may improve on clinical judgment, or the findings of instruments less targeted to the needs of adolescents and young adults with disabilities in transition programs. Fundamentally, the results will indicate how the TPI may be refined in order to become a more valid and reliable measure.

Recent recognition of the co-occurrence of autism and gender diversity has led researchers to investigate the unique experiences and mental health of individuals at this intersection. Past research has indicated that autistic, gender diverse individuals experience poorer mental health compared to those who are either a gender minority, autistic, or those who belong to neither of these groups. Given the correlation between parent and child health, and recent reports from parents regarding increased support needs at this intersection, it is important to address the health and unique needs of parents among this population. This cross-sectional, survey-based study aims to investigate parent-reported stress and mental health of parents whose adolescents are autistic and gender diverse, in comparison to those who belong to only one of these minority groups (gender diverse or autistic) or neither group. Additionally, the study will examine how parental perceived social support, as well as parent-reported autism characteristics and quality of life in their children, may be associated with parental stress and mental health in parents of autistic, gender diverse adolescents. The findings from this study will improve understanding of the mental health and stress of parents whose adolescents are autistic and/or gender diverse, along with what factors are associated with their well-being. These findings have the potential to inform future work testing supports addressing the needs of this sub-population.

What are the goals of the study?

The goal is to address gaps in the literature related to parents of autistic, gender diverse adolescents. I hope to learn about parental stress and mental health in groups that have not previously been thoroughly explored (parents of gender diverse adolescents and parents of autistic, gender diverse adolescents). I hope to identify factors associated with mental health and stress among these parents that can inform future research and practices.

What will happen during the visit or online?

Participants will fill out an online eligibility survey (aprox. 5 min long). If eligible, they will receive an email with a link to the online study survey. This is a 30-45 min survey in which participants answer questions related to themself and their adolescent. Upon completion of the survey, they will be emailed a $15 Amazon gift card.

How will this help families?

This project will contribute to our understanding of parent mental health and possible risk/protective factors among parents of adolescents in general and among specific at-risk populations. Understanding parent mental health and stress among families in these understudied subgroups can help drive future research around supports for families of gender diverse autistic youth, with the potential to improve quality of life of both parents and autistic adolescents.

We are excited to invite you to participate in our upcoming survey where you can win a $50 Amazon gift card for participating! At Hofstra’s Diagnostic and Research Institute for Autism Spectrum Disorders (ASD), we are committed to advancing knowledge and understanding in families parenting autistic children. The current study titled, “The Relationship Between Dyadic Coping and Couple Satisfaction for Parents with Autistic Children” utilizes a survey that takes approximately 10 minutes. Your input will contribute to the body of knowledge in autism research. Survey Link: https://tinyurl.com/hofstraasd

What are the goals of the study?

The goal of the current study is to further understand how parents with autism utilize coping mechanisms to overcome stress and achieve satisfaction within their relationships.

What will happen during the visit or online?

You will take a 10 minute survey.

How will this help families?

This may help in understanding the support systems in place for children with autism and contribute to the positive research surrounding autism and families that have autistic children.

Recent work suggests that mothers of children with disabilities are at increased risk for accelerated cognitive aging. Mothers of children with autism spectrum disorder (ASD), in particular, may be especially susceptible to atypical aging given their elevated rates of key risk factors for dementia relative to mothers of typically developing children or children with other neurodevelopmental disorders. A significant number of mothers of children with ASD (up to 65%) continue to be caregivers for their adult children, resulting in increased stress, depression, loneliness, reduced social support, and poor sleep, all of which are risk factors for dementia-related disease. This NIH-funded study conducted by Dr. Laura Friedman at the University of South Carolina aims to address gaps in the literature on cognitive decline in mothers of children with ASD and associated risk factors.

What are the goals of the study?

Findings from this study will provide insight into atypical cognitive aging among mothers of children with ASD as well as potential risk factors. This will shed light on the need to monitor aging in this group, which may have broader consequences on their children who continue to live at home and depend on their parents as caregivers after high school.

What will happen during the visit or online?

You will complete 1 hour of surveys about various topics related to your life, including your memory and mental health. Then you will complete a 2 hour interview via Zoom with a trained examiner who will ask you questions about your experiences. You will also complete measures of thinking skills and attention.

How will this help families?

This study will contribute to our understanding of the potential link between autism and dementia-related disease, and is an important step in identifying the need for and advocating for family-centered supports through the lifespan.

The objective of this study is to assess the stress level and engagement of students subjected to different forms of training. The subjects will include students and trainees with learning and/or developmental disabilities in addition to neurotypical students. The training will be delivered in multiple forms: pre-recorded single viewer, prerecorded with additional participants, pre-scripted live one-on-one and/or pre-scripted live with additional participants. We aim to determine which training is least stressful and most engaging for students and if differences exist based on a specific disability with a focus on students with autism spectrum disorder.

What are the goals of the study?

The objective of this study is to assess the stress level and engagement of students subjected to different forms of training.

What will happen during the visit or online?

The subjects will be fitted with a Shimmer Glove on their hand and will wear TobiiPro glasses for eye tracking or an eye tracking bar will be used. Each subject will be asked to submit a salivary sample before each training and directly after each training. They will be asked to complete 3 trainings over 4 visits. The Neurodivergent will attend an acclimation session in which no training is offered.

How will this help families?

This could help them learn which teaching method (in-person, prerecorded video or zoom) is best for their loved one. Which will help them to be stronger advocates.