Language Use in Autism

What are the goals of the study?

A short, online survey about words and phrases used when talking about autism. Our aim is to inform how communities may best and most supportively discuss autism.

What will happen during the visit or online?

You will be asked to rate a list of words/phrases commonly associated with autism based on how harmful/pathologizing vs affirming/helpful you believe they are.

How will this help families?

Study findings will be used to make recommendations about language that is most preferred and affirming when talking about autism. Following these recommendations will allow individuals on the spectrum and their families to receive care that aligns with the values of the autism community and inform training and education efforts.

The study of people with new onset face blindness points to a particular brain circuit. We are investigating if this same brain circuit is involved in face recognition difficulty in individuals with autism. If successful, this study may identify new ways to improve face recognition ability.

What are the goals of the study?

Some individuals with autism have difficulties related to face processing and recognition, which can have substantial effects on everyday life. For this study, we hope to figure out where these face processing difficulties arise in the brain. This research could help us provide targets for treatment and could aid in the development of biomarkers for future detection.

What will happen during the visit or online?

The study involves one virtual visit and one visit to Boston Children’s Hospital. The first study visit will involve a series of computer activities designed to measure face processing and should last around 2 hours. The second study visit will involve an MRI, during which the participant will complete additional face processing tasks. This second visit may last up to 3 hours. In between these two visits, we will also share a link to some questionnaires to be completed online by the participant and a caregiver.

How will this help families?

It may lead to new treatments for face recognition difficulties which may help social development.

In less than 45 minutes, participants can help us understand the greater extent of mental abilities seen in autism and help dispel harmful per-conceived notions of the autistic mind.

What are the goals of the study?

This study aims to understand how people mentally represent others on a more nuanced level.

What will happen during the visit or online?

Participants will read short (4-sentence) stories and make True/False responses about the people in them. Then participants will read statements and judge how pragmatically sound they are for communication.

How will this help families?

Improving our understanding of the social brain can inform the way families affected by autism understand and interact with their loved ones. Allow them to enjoy an improved quality of life, based on an understanding of autism gained through scientific insights.

This is the first study to consider the neural indices of cognitive inflexibility in autism. Since cognitive inflexibility is related to core autism features, we hope that findings from this project will support the field’s goal to inform prevention and treatment interventions to inform personalized interventions that address specific outcomes.

What are the goals of the study?

This study seeks to examine core behavioral and neural presentations associated with cognitive inflexibility (CI) in both autistic and non-autistic youth. The current project is also aimed at validating specific neural indices associated with CI and better understand links between neural indices and behavioral presentations of CI. This study will further examine relations of CI to core autism symptoms (i.e., social communication deficits and RRBs), as well as co-occurring psychopathology that cause significant impairment.

What will happen during the visit or online?

Participants will complete behavioral assessments (ADOS, DKEFS, EFCT), cognitive assessment (KBIT), an EEG task, and self-report measures. Parents will also complete parent-report measures.

How will this help families?

Upon request, the research team will provide a research report of all assessment results (including ADOS) that can be shared with other service providers, schools, etc.

This study will test the Training to Understand and Navigate Interactions (TUNE In) program via a randomized control trial.

What are the goals of the study?

The purpose of this study is to develop and test ways of helping adults with autism to improve their social functioning.

What will happen during the visit or online?

Complete psychological questionnaires at three points. 50% chance to receive 17-week TUNE In Program consisting of individual sessions, group sessions, and advocacy sessions.

How will this help families?

Participation could lead to increased interest in interacting with others; improved ability to understand other people, emotions, and communication between people; improved social skills; and an improved ability to apply that understanding and skill to day-to-day life. These improvements could lead to better interactions with other people in many settings.

By learning more about how the ASD brain in children, we can help establish ways to identify and intervene in ASD early. If ASD is identified at young ages, resources such as social supports can bolster long-term adaptive functioning in children with ASD. Also, increased understanding about the mechanisms that underlie atypical social functioning in ASD will allow science to develop targeted, effective assistance for these youth as early as possible.

What are the goals of the study?

This project aims to further understand what makes the brains of children with autism spectrum disorder (ASD) unique. Specifically, this study is interested in helping us understand how neural processes in the developing ASD brain contribute to atypical social functioning. A promising new method of assessing brain activity called “phase-amplitude coupling” will be measured via non-invasive electroencephalogram (EEG) technology.

What will happen during the visit or online?

Both children who do and do not have ASD will be invited to participate in an EEG, play computer games during the EEG, and fill out self-report questionnaires with the help of a trained researcher. Parents of participating children will also fill out related surveys. This study is comprised of two visits spaced out over several months.

How will this help families?

Increased understanding about the mechanisms that underlie atypical social functioning in ASD will allow science to develop targeted, effective assistance for these youth as early as possible.

What are the goals of the study?

Researchers from Rutgers University are recruiting children/adults and their parents or caregivers for a research study assessing the utility of a diagnostic interview for autism evaluations.

What will happen during the visit or online?

Children/adults will complete questionnaires (if able) and one 2-3 hour diagnostic evaluation. Parents/caregivers will complete questionnaires and two 2-4 hour interviews. A 1-hour feedback session to review test results.

How will this help families?

Families who complete the study will receive a brief written summary of results from their assessment and a $75 gift card.

This study is important because it can provide new understandings of social mechanisms in autistic individuals, a largely under-investigated area of autism. It might also have long term impact and clinical utility as results might inform better knowledge about social space in autism, which may lead to better behavioral interventions and therapies to assist autistic individuals in their qualities of life. At the same time, participation in this study culminates in participants receiving testing reports of evaluations that generally can cost upwards of $1000-2000 for free.

What are the goals of the study?

The overall goal of the study is to understand differences in neural computations of social interactions in autism using dynamic tasks and neuroimaging methods.

What will happen during the visit or online?

It involves 2-3 in person visits for EEG, MRI tasks, and clinical assessments, as well as remote surveys and clinical assessments. You will be compensated $20 an hour for your time, which should be about $150 in total.

How will this help families?

Help to better understand the social brain and phenotype of autism in order to provide new insights into treatment targets.

Sensory-based interventions are commonly prescribed by occupational therapists in the treatment of children with autism spectrum disorder and related neurodevelopmental disorders. However, while there is emerging evidence for Ayres Sensory Integration therapy in individuals with IQs above 65, many studies evaluating the efficacy of various sensory-based interventions have demonstrated low or insufficient strength of evidence. This study aims to pinpoint interventions that might be promising candidates for targeted trials based on prevalence and perceived efficacy in a large community sample.

What are the goals of the study?

The purpose of this research study is to identify the sensory interventions and strategies that caregivers consider the most effective at treating or managing their child’s sensory reactivity symptoms.

What will happen during the visit or online?

If you agree to take part in this research, you will be asked to complete a 5-10 minute anonymous survey, which will ask you to identify your child’s sensory preferences and your satisfaction with the sensory interventions you use currently or have tried in the past.

How will this help families?

By participating in this study, caregivers of children with autism can share their experiences with the sensory interventions that have worked best for their child. The goal of this project is to use these responses to drive future research to improve the efficacy and accessibility of these strategies.

This study could help dispel dated and harmful notions about the limits of the autistic mind. We aim to understand certain forms of social cognition on a more nuanced level to explore the greater extent of autistic abilities beyond what has been previously assumed.

What are the goals of the study?

To understand complex social cognitive processes and their instantiation in neuro-divergent individuals.

What will happen during the visit or online?

Online Study: Participation usually takes less than 1 hour and entails reading short (4 sentence) stories and quickly answering True/False prompts. Then making judgements about the linguistic “strangeness” of statements made about agents in stories.

How will this help families?

The results of this study will provide new insight on the nature of certain cognitive processes. Equipped with this new knowledge, families of individuals affected by autism can better understand and interact with this population such that one’s quality of life may be improved.

Individuals with autism can have reduced awareness of what strengths they possess. This can associated with lower self-esteem, mood disorders, and negative repetitive thinking about one’s self. This study is looking to explore strength awareness in adolescents with autism, in hopes to investigate the effects of improving strength awareness

What are the goals of the study?

We are looking to evaluate how young adults identify and express their own personal identities.

What will happen during the visit or online?

Fill out surveys via a secure research platform asking about experiences, mood, and how one describes oneself (roughly one hour, can be completed over separate sessions) 2. Parent or legal guardian will fill out surveys about their child (roughly one hour).

How will this help families?

Decreased strength awareness can be problematic for children as they transition into adulthood. It can cause reduced ability to advocate for oneself in relationships, school settings, and during employment. This study is evaluating strength awareness in adolescents with autism to further research the effects of decreased and increased strength awareness.

Individuals with autism are significantly under-employed, and those within 2 years of high school graduation experience the most significant risk of unemployment. If successful, this research study will result in a novel intervention that enhances interviewing skills that may lead to better employment outcomes. While the primary goal of the study is to improve character strength identification in the context of a job interview, it could potentially expand to other areas in life as well.

What are the goals of the study?

We are looking to evaluate how effective a strength-based intervention my be in improving job interview skills in young adults.

What will happen during the visit or online?

A baseline testing session, lasting roughly 2 hours. 2. After this testing session, each participant will be randomly placed into a “training group” (which will participate in 9 online sessions lasting 60 minutes each) or the “control group” (which will do nothing but will receive the training material to use on their own after study completion). 3. All participants will participate in a follow-up testing session, lasting roughly 2 hours. 4. After the follow-up session, participants will be contacted in 6 month by phone call.

How will this help families?

Inability to obtain work can lead to negative outcomes including reduced ability to establish financial independence and reduced satisfaction of life. In hopes of better employment outcomes for individuals with autism, this research study examines a novel intervention to enhance job interview skills.