Two weeks ago, the autism research community lost a pioneer, mentor and advocate for the autism community. This podcast only highlights a portion of the enormous contribution he made to autism research and the impact his research had on families with ASD. Also, two people that know him best, one of his current mentees, Suzannah Iadarola and his wife, Jennifer Katz, reflect on his dedication and commitment to families of all ages. He will be missed.
On this week’s podcast, the link between polycystic ovarian syndrome and autism explained and tied in with a new study on the highly toxic chemical DDT. They do have a common link. Research also shows that environmental exposures and maternal medical conditions contribute to a host of outcomes and comorbidities, autism being one of them.
On this week’s podcast, Melissa Scott of Curtin University discusses findings from the first paper out of Curtin’s collaboration with ASF, Stony Brook University, and Karolinska Institutet on an international policy brief on employment for people with autism. Based on a scoping review of existing research on employment practices, the environment was one crucial element missing as a focus from all the intervention studies. Findings from the scoping review were presented at the International Society for Autism Research (INSAR) 2018 Annual Meeting in Rotterdam, Netherlands.
Listeners to the ASF podcast get a break this week, although you are all encouraged to check out the Spectrumly Speaking podcast. Spectrumly Speaking is a podcast dedicated to women on the autism spectrum, produced by Different Brains. Every two weeks join hosts Becca Lory, CAS, BCCS, and Katherine Cody, Psy.D., as they discuss news articles, share personal stories, and interview members of the autism community.
On this week’s podcast, highlights from the Phelan-McDermid Syndrome Foundation 2018 International Family Conference in Dallas, TX. People with Phelan McDermid Syndrome, or PMS, suffer from seizures and intellectual disability, and about 70% have an ASD diagnosis. This syndrome is caused by mutations of the SHANK3 gene, which is present in about 1% of people with autism, making it the most common single genetic influence of ASD. Learn more about the conference here.
On this week’s podcast, two studies that used a randomized design to show how interventions can be delivered in the classroom.
On this week’s podcast, highlights of a new systematic review on Early Intense Behavioral Intervention. Thank you to the ASF community for suggesting this topic for the podcast!
If you want to know about people with autism, ask them. Scientists are working on how they collect information from people with autism in order to better understand individual experiences and produce findings that may help improve services. Listen to the podcast episode here.
For this week’s podcast, Soheil Mahdi of the Karolinska Institutet describes the International Classification of Functioning (ICF), a tool used being used to describe the strengths of people with autism in order to identify opportunities for them. ASF is collaborating with Mr. Mahdi on an employment policy brief.
On this week’s podcast, data obtained from brains of people with autism is reused and re-analyzed so that a new role of mitochondria and their relationship to the activity of synapse genes could be discovered. In addition, cellular stress is seen in the brains of people with autism. What comes first? Mitochondrial dysfunction and cellular stress or changes in brain development? These findings were thanks to resources provided by the Autism BrainNet. You can learn more about brain tissue donation by signing up at takesbrains.org.
On this week’s podcast, a special episode highlighting recent research focusing on fathers. This includes genetics, parental stress and quality of life, and broader autism phenotype features. Of note, two new studies that look at antidepressant exposure in father and probability of having a child with autism – a variation on studying maternal exposures.
Suicidal thoughts and suicidal attempts have been shown to be increased in people with ASD. Rates are similar to those with bipolar depression and schizophrenia, but are higher even without psychosis. This is shocking and an urgent health issue in the autism community. This week’s podcast summarizes recent data, publications, presentations, and concerns of thought leaders in autism about rates of suicide, what the risk factors are, and where research should be directed to prevent suicide.
If you or anyone you know is thinking about ending their life, please reach out to the National Suicide Prevention Hotline: +1 (800) 273-8255.