This week two groups of heroes of autism research published studies that may not be the type of major breakthrough that the media reports on, but they are more important to families: These studies help translate what works in the research clinic into the community. Specifically, is it even possible, how, and what do families need to know when they receive an intervention that has yet to be “field tested”. This is a whole field of research called implementation science, and it deals with how scientists and community services implement what is learned in research settings into real world settings. Listen to the podcast here.
If you want to know about people with autism, ask them. Scientists are working on how they collect information from people with autism in order to better understand individual experiences and produce findings that may help improve services. Listen to the podcast episode here.
This week’s podcast is a short summary of just a few of the presentations. There was more of an emphasis on what has been called “real life” research questions like employment, quality of life, and relationships. As a result, some of the more basic science questions around autism are now being presented at other meetings. This is a shame. This podcast follows some of those basic science questions to the now translational opportunities that were presented at the meeting. It also highlights some newer findings that will provide help to people at all ages who need supports and services.
Scientists have studied males compared to females with autism, but rarely have there been studies about what clinicians see as differences in these two groups. Given that they provide insight on diagnosis, needs and access to services, it is kind of important to talk to them, and a study out this week in the journal Autism did just that. Click here to read the study.
Also, scientists are starting to understand the role of exposures in parents and how they affect diagnosis of autism in their children, but this week a new wrench was thrown into the wheel: researchers in the UK found that grandparental exposures play a role in autism diagnosis too. Luckily, this too is open access and you can read it for yourself here. It was covered in the media and we have perspective from a parent included.