Understanding the experiences of parents caring for an adult-child with profound autism
What's the study about?
This research study will help researchers better understand how parental caregivers of adults with profound autism rate their quality of life and what factors most significantly impact their quality of life.
Who can participate?
- You are the parent and primary caregiver of an autistic adult (age 18+) requiring very high levels of support
- You reside in the United States
- You have the ability to speak and read in English
What will participants be doing?
- Participants will answer questions through an online survey about themselves and their caregiving experiences
- Participants will be able to elect if they would also like to participate in a one-on-one interview via Zoom
Why is this important?
This information can be used to identify policies, supports, resources, and interventions for these parents to improve their lives and support them in their role as caregivers.
Quick Facts
WHO:
Researchers: Jessica Wellington
Institution:: Pennsylvania State University Take the eligibility survey
WHAT:
Understanding parental caregivers experiences
WHERE:
Online at this link
INTERESTED?
Contact:
Jess Wellington at jdw6174@psu.eduEnds December 1, 2025
Study flyer:
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