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The Autistic Perspective On Parental And Family Stress Throughout The Childhood Experience

What's the study about?

Current discussions around autism and the family dynamic are centered primarily on the parental perspective, which leaves a gap in the research and is also a source of mischaracterization and bias expressed and felt by autistic individuals. This study intends to address the absence of autistic voices on familial concerns. The data gathered aims to include the autistic voice and perspective on family matters by analyzing themes within an open-ended qualitative survey regarding comparisons between identified neurodiverse and neurotypical backgrounds. Questions will gather input to identify notable trends throughout the autistic childhood experiences. This exploratory research will contribute to an understanding of the root of the stressors found in a neurodiverse household, particularly from the perspective of autistic individuals.

Who can participate?

  • Must be 18 years or older
  • Self-report an autism spectrum disorder (ASD) diagnosis

  • What will participants be doing?

    Participate in a study to address the absence of autistic voices on familial concerns! After arranging a time to meet up, this study aims to have a virtual interview with autistic individuals for up to an hour and incorporate their take on family matters.

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    Why is this important?

    Benefits may include a genuine period of self-reflection on complex issues and a more well-rounded and empathetic outlook on potentially turbulent times. It may provide, an avenue for people to take on more of a constructive and conscious role in their family dynamics. Societal benefits include increased knowledge, awareness, and direct input from the autistic community within the scientific literature. Increasing the autistic voice and inviting them to share experiences based on different household types will benefit all aspects of society. Particularly those who interact with, and support, autistic individuals by providing first-hand accounts of household dynamics and potentially aid in the revelation of strategies that foster family success. This study impacts existing knowledge and builds on literature by including the integral voice of participants who are autistic.

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